Watch Traci's Story, a sarcoidosis patient.
Within Cleveland Clinic's Respiratory Institute, the Sarcoidosis Center serves as a single point of access for patients to receive the best care for their condition. With innovative methods of care, research and technology, we are committed to providing the most comprehensive care to patients with single and multi-organ disease involvement.
A Team Approach
Sarcoidosis often affects more than one organ, so patients may need to see more than one type of physician. At the Sarcoidosis Center, we make sure patients quickly see the best doctors for their case by using a multidisciplinary approach. Our team of doctors, who have expertise and an interest in sarcoidosis, includes specialists in pulmonology, cardiology, electrophysiology, neurology, ophthalmology, dermatology and rheumatology.
At Cleveland Clinic's Sarcoidosis Center, we:
- offer individualized patient care with access to a spectrum of specialists
- provide cutting-edge testing including advanced diagnostic bronchoscopies for complicated sarcoidosis cases, such as cardiac sarcoidosis, as well as small-fiber neuropathy and neurosarcoidosis through our Neurosarcoidosis Clinic
- minimize the degree to which sarcoidosis can affect quality of life for patients
- conduct research to understand the disease process of sarcoidosis and to find alternative treatments for care
Make an Appointment
Call and request an appointment today with one of our sarcoidosis doctors locally at 216.444.3613 or toll-free 866.783.3679.
Sarcoidosis is a common and potentially severe disorder. Approximately 60 to 70 percent of patients with sarcoidosis will experience mild symptoms with a quick recovery. Other patients will develop long-term complications with little or no response to conventional steroidal therapy.
Anyone can get sarcoidosis, but the disease is found more commonly in African-Americans and affects individuals of Irish, German, Scandinavian, and Puerto Rican descent.
Learn more about sarcoidosis symptoms, causes and risks, diagnostic tests and procedures, treatments, and wellness tips.
Free Guide to Sarcoidosis
Watch our In-Depth Videos and Download Your Free Guide to Sarcoidosis from Cleveland Clinic's Sarcoidosis Center of Excellence.
When was your last pneumonia shot?
Pneumonia shots are needed every five to seven years.
Are you taking steroids for more than six months?
Remind your doctor to order your bone density test.
Are you getting enough sleep?
Research has shown that proper amounts of sleep and exercise along with a nutritiously balanced diet result in a body that is in top form, physically, mentally and spiritually.
The following Cleveland Clinic Respiratory Institute doctors and staff specialize in the treatment of sarcoidosis:
Make an Appointment
Request an appointment today with one of our sarcoidosis doctors. Call us locally at 216.444.3613 or toll-free 866.783.3679.
How to go through our scheduling process:
- First and foremost make sure that your insurance will accept your visit to our center
- It is not a matter of the Clinic accepting your insurance, rather your insurance covering your visit here
- This is a conversation to be had with your insurer
- Please register with our Electronic Medical Records System
- Call either 216.444.2273
- Or 216.444.3613 (option 1)
- Call 216.444.3613 (select option 4 to go through the intake process)
- You will be taken through a questionnaire to expedite your scheduling process
- Send your medical records to fax: 216.636.5384
- Including records of diagnosis
- If no diagnosis then what leads to a suspicion of Sarcoidosis
- Approximately the last 6 to 12 months of treatment records, including but not exclusive to:
- History and Physical
- Radiology interpretations
- Hospitalization records including discharge
- Pathology reports
- Laboratory Reports
- Operative Reports
- Biopsy slides – whenever biopsy occurred
- Patient Responsible for Hand-Carrying Imaging on a CD to Appointment
- Our Physician Assistant (PA) will look over the intake information and records
- They will call the patient and go over the symptoms in a more clinical aspect
- This will help best determine what appointments to coordinate
- i. Usually two days at most worth of appointments and tests depending on what needs to be scheduled; every patient is different and has different needs
- Our schedulers will call you with an appointment date and time within days after speaking with the PA.
You will not receive an appointment date and time during the initial intake process.
Sarcoidosis Clinical Trials
Below are sarcoidosis clinical trials taking place at Cleveland Clinic Sarcoidosis Center:
IRB 11-971 Registry of patients with sarcoidosis associated pulmonary hypertension (RESAPH)
An open label registry consisting of two populations of patients with Sarcoidosis associate pulmonary hypertension (SAPH). One group will be patients with known SAPH who are under care at the study center. The second group will be a prospective study of newly diagnosed cases of SAPH. The goal of the registry is to characterize the demographics, clinical course, hemodynamics, pulmonary physiology, and disease management of sarcoidosis associated pulmonary hypertension on the United States compared to non-US sites. In order to do this, patients will be seen every three months for the first 2 years and specific information will collected at times indicated.
Recommended Research Readings
Below is a list of recent peer-reviewed research articles about sarcoidosis written by Cleveland Clinic doctors and staff.
- Concomitant Castleman's Disease and Sarcoidosis
Rice, BL, Farver, CF, Pohlman, B, Burkey, BB, Parambil, JG. Am J Med Sci. 2011;341(3):257-259.
- Development of a Sarcoidosis Murine Lung Granuloma Model Using Mycobacterium Superoxide Dismutase A Peptide
Swaisgood, CM, Oswald-Richter, K, Moeller, SD, Klemenc, JM, Ruple, LM, Farver, CF, Drake, JM, Culver, DA, Drake, WP. Am J Respir Cell Mol Biol. 2011;44(2):166-174.
- Efficacy of Intravenous Immunoglobulin for Small Fiber Neuropathy Associated with Sarcoidosis
Parambil, JG, Tavee, JO, Zhou, L, Pearson, KS, Culver, DA. Respir Med. 2011;105(1):101-105.
- Sarcoidosis and Small-fiber Neuropathy
Tavee, J, Culver, DA. Curr Pain Headache Rep. 2011 Jun;15(3):201-6.
- Treatment of Sarcoidosis
Lazar,CA, Culver, DA. Semin Respir Crit Care Med. 2010;31(4):501-518.
- A Concise Review of Pulmonary Sarcoidosis
Baughman, RP, Culver, DA, Judson, MA. Am J Respir Crit Care Med. 2011 Mar 1;183(5):573-81. Epub 2010 Oct 29.
- Downregulation of FAK-related Non-kinase Mediates the Migratory Phenotype of Human Fibrotic Lung Fibroblasts
Cai, GQ, Zheng, A, Tang, Q, White, ES, Chou, CF, Gladson, CL, Olman, MA, Ding, Q. Exp Cell Res. 2010;316(9):1600-1609.
- Cellular Responses to Mycobacterial Antigens Are Present in Bronchoalveolar Lavage Fluid Used in the Diagnosis of Sarcoidosis
Oswald-Richter, KA, Culver, DA, Hawkins, C, Hajizadeh, R, Abraham, S, Shepherd, BE, Jenkins, CA, Judson, MA, Drake, WP. Infect Immun. 2009;77(9):3740-3748.
- Gene Expression Profiling Identifies MMP-12 and ADAMDEC1 as Potential Pathogenic Mediators of Pulmonary Sarcoidosis
Crouser, ED, Culver, DA, et al. Am J Respir Crit Care Med. 2009;179(10):929-938.
- Infliximab Therapy Rescues Cyclophosphamide Failure in Severe Central Nervous System Sarcoidosis
Sodhi, M, Pearson, K, White, ES, Culver, DA. Respir Med. 2009;103(2):268-273.
Our secure online service, Dr.Connect, provides referring physicians access to patient’s treatment progress with streamlined communication from Cleveland Clinic physicians to your office, allowing continued participation in the ongoing care of patients. With the best possible treatment plans and coordinated care, our team approach benefits both the patient and the referring physician.
Committed to informing the medical community of advances and discoveries about sarcoidosis, the Cleveland Clinic Sarcoidosis Center provides opportunities for physicians, respiratory therapists, nurses, and physician assistants to learn about current clinical care and research activities through its online presentations, seminars and health talks.
Pulmonary and Critical Care Medicine Fellowships
Our pulmonary and critical care medicine fellowships provide board-certified general internists with the tools necessary to care for patients, who have complicated lung diseases and critical illnesses. During the three-year training period, which includes an 18-month core program and 18-month subspecialty track, fellows are exposed to a wide variety of medical problems in both the inpatient and outpatient settings.
Cleveland Clinic Respiratory Institute offers continuing medical education courses through the Center for Continuing Education. We are providers of AMA-approved continuing medical education (CME) units for physicians and physician assistants, and of continuing education units by the Ohio Nurses Association for nurses and by the Ohio Respiratory Care Board for respiratory therapists.
Disease Management Project
Cleveland Clinic publishes an online medical reference, the Disease Management Project, which provides nationally-established treatment guidelines for the most common diseases and conditions.
2012 Sarcoidosis Patient Conference
View any of the presentations from the 2012 Sarcoidosis Patient Conference by clicking on its link below: