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Diseases & Conditions

Mitochondrial Disease Resources

Mitochondrial Disease Organizations

United Mitochondrial Disease Foundation (UMDF)
8085 Saltsburg Road Suite 201
Pittsburgh, PA 15239
Phone: 412.793.8077
Toll-free: 888.317.8633

Organic Acidemia Association
Carol Barton, Executive Director
9040 Duluth Street
Golden Valley, MN 55427
Phone: 763.559.1797 (Central Time)
Toll-free fax: 866.539.4060

Fatty Oxidation Disorder Support Group
Deb Lee Gould, MED
Director, FOD Family Support Group
P. O. Box 54
Okemos, MI 48805
Phone: 517.381.1940 (EST 8am - 8pm)

Other National Organizations

2421 Community College Ave.
William Patrick Day Early Childhood Center
Cleveland, OH 44115
Phone: 216.622.0755

March of Dimes Birth Defect Foundation Resource Center
1275 Mamaroneck Ave.
White Plains, NY 10605
Phone: 914.997.4488

National Health Information Center (NHIC)
8600 Rockville Pike, MSC 3833
Building 38A, Room 4S-410
Bethesda, MD 20892
Phone: 301.496.0176

National Institutes of Health (NIH)
9000 Rockside Pike
Bethesda, MD 20892

National Organization for Rare Diseases (NORD)
P.O. Box 1968
55 Kenosia Avenue
Danbury, CT 06810
Phone: 203.744.0100
Fax: 203.798.2291

The Oley Foundation
For home nutrition support
43 New Scotland Ave., MC-28
Albany Medical Center
Albany, NY 12208-3478
Toll-free: 800.776.6539 (US & Canada)
Europe:  518.262.5079 — calls from Europe and elsewhere
Fax: 518.262.5528

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This information is provided by the Cleveland Clinic and is not intended to replace the medical advice of your doctor or health care provider. Please consult your health care provider for advice about a specific medical condition. This document was last reviewed on: 8/5/2015...#8663