Your doctor is the best resource for finding out important information related to your particular case. Not all patients with sarcoidosis are alike, and it is important that someone who knows you as a whole person evaluates your situation. Because sarcoidosis can affect different organ systems and can change over time, it is important for patients with sarcoidosis to see their doctors at regularly scheduled intervals.
Other sarcoidosis informational sources include:
Sarcoidosis-Specific Organizations
The Cleveland Clinic Sarcoidosis Center of Excellence
The Cleveland Clinic Foundation (A90)
Department of Pulmonary & Critical Care Medicine
9500 Euclid Avenue
Cleveland, OH 44195
216.445.1233 or 445.6972
216.445.8794 (fax)
Sarcoidosis hotline 866.783.3679 or 216.445.8160 (fax)
www.clevelandclinic.org/ccfpulmonary
Foundation for Sarcoidosis Research
122 South Michigan Avenue Suite 1700
Chicago, IL 60603
312.341.0500
312.322.0808 (fax)
www.stopsarcoidosis.org/
Site provides basic information about sarcoidosis, research information, patient information, and other resources.
National Sarcoidosis Resource Center
P.O. Box 1593
Piscataway, NJ 08855-1593
732.699.0733
732.699.0882 (fax)
www.nsrc-global.net
Site provides links to other sites, videos and books for purchase, and microscopic images of sarcoidosis.
Sarcoidosis Center
6005 Park Avenue Suite 501
Memphis, TN 38119
901.761.5877 or 1.866.SARCOID (727.2643)
901.761.2280 (fax)
www.sarcoidcenter.com
Site provides general information on sarcoidosis; newsletter, books and articles; extensive internet links; clinical trial information; and a worldwide directory of sarcoidosis experts.
Sarcoidosis Network Foundation
11428 East Artesia Blvd, Suite #10
Artesia, CA 90701
562.809.8500
562.809.8182 (fax)
www.sarcoid-network.org/snf.html
Site provides general information on sarcoidosis; information about events and meetings, and other information.
Sarcoidosis Networking Association
5302 S Sheridan Ave
Tacoma, WA 98408
253.826.7737
www.sarcoidosisnetwork.org
email: sarcoidinformation@sarcoidosisnetwork.org
Site provides basic information on sarcoidosis, links to support groups and other sites, upcoming sarcoidosis meetings and events, and a newsletter.
Sarcoidosis Research Institute
www.sarcoidosisresearch.org
Site provides links to other sarcoidosis resources, bibliography of published articles, and information on clinical trial participation.
Other Organizations
American Academy of Dermatology
1350 I St. NW, Suite 880
Washington, DC 20005-4355
202.842.3555
202.842.4355 (fax)
www.aad.org
American Liver Foundation
75 Maiden Lane, Suite 603
New York, NY 10038
800.GO.Liver (465.4837) toll-free
888.4HEP.USA (443.7872) toll-free
www.liverfoundation.org
American Lung Association of Ohio, Northeast Region
6100 Rockside Woods Blvd. #260
Independence, OH 44131
216.524.LUNG (5864)
216.524.7647 (fax)
www.lungusa.org (national web site)
Arthritis Foundation
P.O. Box 7669
Atlanta, GA 30357-0669
800.568.4045
www.arthritis.org
National Eye Institute
31 Center Drive MSC 2510
Bethesda, MD 20892- 2510
301.496.5248
www.nei.nih.gov
National Heart, Lung, and Blood Institute (NHLBI) Division of Lung Diseases
P.O. Box 30105
Bethesda, MD 20824-0105
301.592.8573
www.nhlbi.nih.gov/health/infoctr/
National Institute of Arthritis and Musculoskeletal and Skin Diseases
1 AMS Circle
Bethesda, MD 20892-3675
301.495.4484 or 877.22.NIAMS (226.4267)
301.718.6366 (fax)
www.NIAMS.nih.gov
National Library of Medicine
8600 Rockville Pike
Bethesda, MD 20824
888.FIND.NLM 888.346.3656
www.nlm.nih.gov
Ocular Immunology and Uveitis Foundation
Massachusetts Eye Research and Surgery Institute
348 Glen Road
Weston, MA. 02493
617.494.1431 ext 112
617.797.8660 (support group)
www.uveitis.org
Other Helpful Web Sites
National Institutes of Health
www.clinicaltrials.gov
Site provides a list of clinical trials recruiting patients with sarcoidosis.
National Library of Medicine (Medlineplus interactive tutorials)
www.nlm.nih.gov/medlineplus/tutorials
Sarcoidosis interactive tutorial provides excellent, easy-to-understand information on the condition.
National Library of Medicine (Medlineplus)
www.nlm.nih.gov/medlineplus
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This information is provided by the Cleveland Clinic and is not intended to replace the medical advice of your doctor or health care provider. Please consult your health care provider for advice about a specific medical condition. This document was last reviewed on: 12/4/2006...index#11868
