- Adult Congenital Heart Association (ACHA)
- American Heart Association
- American Stroke Association
- Aortic Hope
- Ben’s Friends
- Canadian Adult Congenital Heart Network
- The Children’s Heart Foundation
- Children’s Heart Network
- Cleveland Clinic Stroke and Brain Aneurysm Support Group
- CongenitalHeartDefects.com
- Congenital Heart Information Network
- Congenital Heart Information Network Facebook Support Group
- Congenital Heart Surgeon’s Society
- Conquering CHD
- The Ehlers-Danlos Society
- Fibromuscular Dysplasia Society of America (FMDSA)
- GotAED
- HCMBea
- HeartValveSurgery.com
- Hypertrophic Cardiomyopathy Association (HCMA)
- International Society for Adult Congenital Heart Disease (ISACHD)
- The John Ritter Foundation for Aortic Health
- Klippel Tranaunay (KT) Support Group
- Living with Valve Disease
- Loeys-Dietz Syndrome (LDS) Foundation
- The Marfan Foundation
- May Thurner Syndrome Facebook Support Group
- Mended Hearts
- The Patient’s Guide to Heart Valve Surgery – Adam’s Heart Valve Surgery Blog
- Sisters by Heart supporting Hypoplastic Left Heart Syndrome (HLHS)
- StopAfib.org
- Sudden Arrhythmia Death Syndrome (SADS) Foundation
- TRIO: Transplant Recipient International Organization
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