Overview

Overview

The broad range of services offered by a unified group of pediatric epilepsy specialists makes ours one of the foremost programs of its kind in the world and among one of the only in the country that provides a well-rounded range of care for every pediatric epilepsy patient.

  • Our specialists oversee more than 2,000 pediatric epilepsy patient visits
  • More than 500 children are evaluated each year in the Pediatric Epilepsy Monitoring Unit, which operates 24 hours a day, seven days a week.
  • Cleveland Clinic was one of the first medical centers in the country to use specialized technology allowing physicians to determine the precise location of seizure activity in the brain.
  • Patient outcomes are among the best in the country for a variety of epileptic syndromes.
  • Our center has almost thirty years of experience performing epilepsy surgery.

Epilepsy surgery is a highly specialized procedure involving the safe removal of the area of the brain associated with the seizures. Our research has shown that epilepsy surgery performed at a younger age frequently leads to improved developmental outcome. We have the largest pediatric epilepsy program treating over 100 epilepsy surgeries patients per year.

Surgery is only one aspect of our epilepsy care. Cleveland Clinic's Epilepsy Center is staffed by a number of doctors who specialize in various aspects of epilepsy, as well as experienced pediatric nurses, social workers and child life specialists, allowing us to manage all aspects of pediatric epilepsy care. Typically, epilepsy is related to genetic and metabolic disorders.

Special services for children with epilepsy include the latest in noninvasive imaging technology:

  • Sophisticated neuroimaging with advanced high-resolution magnetic resonance imaging (MRI)
  • Magnetic resonance spectroscopy (MRS)
  • Functional MRI
  • Single-photon-emission computed tomography (SPECT)
  • Positron emission tomography (PET)
  • Magnetoencephalography (MEG)
What We Treat

What We Treat

Our pediatric epilepsy team specializes in the expert management of status epilepticus, focused on treating cases of epilepsy and seizures in children.

Epilepsy is a term used for a group of disorders characterized by a tendency for recurring seizures, which are caused by a sudden increase in electrical activity in the brain that may alter behavior, motor function or consciousness.

There are different types of epilepsy and seizures and not all seizures are due to epilepsy.

Seizure signs and symptoms:

  • Confusion
  • Jerks and twitches
  • Medical genetics
  • Picking or lip smacking
  • Shaking or falling
  • Staring and unresponsiveness
  • Wandering
  • Whole-body convulsions (grand mal seizure)
Programs

Programs

Sturge Weber Syndrome Program

Sturge Weber Syndrome (SWS) is a rare, nongenetic condition resulting from abnormal development of blood vessels of the skin, eyes and brain. Symptoms may include port wine stains, flat, purple-to-red birthmarks usually affecting one side of the face; glaucoma due to increased pressure within the eye; seizures; stroke-like events; migraine headaches; and focal neurological impairments. The condition poses a number of specific health risks due to its progressive, multi-organ involvement.

Cleveland Clinic's Sturge Weber Program Offers:

  • A world-class reputation for diagnosing and treating SWS and related conditions, including one of the largest programs in the world for pediatric and adult epilepsy evaluation, epilepsy surgery and other treatment options.
  • A focus on families, with specialists who address the needs of adult and pediatric patients of all ages.
  • Focused and well coordinated care to help patients access multiple services through one channel without undue delays.

For More Information or to Schedule an Appointment: 216.445.0601

For Referring Physicians

If you have a specific question regarding a patient or our SWS program, contact us at 216.444 8827 or toll free at 1.800.223.2273, ext. 48827

Tuberous Sclerosis Program (TSC)

Tuberous Sclerosis is a genetic disorder which may be characterized by epilepsy, autism or developmental delay, and skin birthmarks in early childhood. Other organs like the heart and lungs may be involved during early or late life, presenting as heart failure, conduction abnormalities, palpitations and breathlessness.

Cleveland Clinic's Tuberous Sclerosis Program Offers:

  • A focused team approach from expert physicians who deliver comprehensive, multidisciplinary medical and surgical care. These physicians discuss patient care, as needed, to provide the best treatment option.
  • A world-class reputation for diagnosing and treating TSC-related conditions, including one of the largest programs in the world for epilepsy evaluation, epilepsy surgery and treatment.
  • A focus on families, with specialists who address the needs of adult and pediatric patients.
  • Coordinated care so patients can access multiple services through one channel.

For more information or to schedule an appointment: 216.445.8726 or 800.CCF.CARE X58726

For Referring Physicians

If you have a specific question regarding a patient or our TSC program, contact Ajay Gupta, MD at 216.445.7728 or toll free at 800.223.2273 X7728

Benefits

Benefits

Cleveland Clinic's Pediatric Epilepsy Program provides a well-rounded range of care through the latest in advanced imaging technologies, individualized medical management, rehabilitation services and support groups. The program works closely with the specialist from the Center for Pediatric Neurology and Neurosurgery.

Epilepsy Rehabilitation Services

If surgery is part of your child’s epilepsy treatment, we offer a comprehensive rehabilitation program through which each child receives an individualized, developmentally based treatment plan for physical, occupational and speech/language services.

A dedicated team of pediatric specialists, including doctors, nurses, rehabilitation specialists and psychosocial support staff works with the Epilepsy Center and each family to help children reach their full potential. Pediatric therapists work one-on-one with each child using state-of-the-art equipment specially designed for children.

Pediatric Epilepsy Support Groups

Our Pediatric Epilepsy Support Group meets regularly to address the needs of families who are caring for children afflicted with difficult-to-control epilepsy, or who have undergone, or are considering, epilepsy surgery. The group provides families an avenue to interact with epilepsy healthcare professionals, volunteers who have knowledge of the unique challenges of pediatric epilepsy, as well as each other. In this venue, families can share their thoughts, emotions and experiences.

Every other year, our Pediatric Epilepsy Support Group hosts a reunion for children who underwent epilepsy surgery at Cleveland Clinic, as well as their families. Physician-led conference sessions are offered to adult participants, while children will enjoy special activities, coordinated by a team of volunteers.

For more information please contact PESG at pediatricepilepsysupport@ccf.org or visit clevelandclinic.org/epilepsysupport.

Staff

Staff

Project CARE

Project CARE

Project CARE is a series of webinars intended to educate parents of children with epilepsy about the different challenges they may face. We have assembled a team of doctors, psychologists, nurses, social workers, and parents of patients with epilepsy to help you.

Our goal is to improve care coordination, increase social support, provide education, and increase engagement for teens with epilepsy and their families. This project is supported by the Health Resources Services Administration of the US Department of Health and Human Services.

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Appointments

Appointments