Children who are born with “single ventricle” heart anatomy (including hypoplastic left heart syndrome, tricuspid/pulmonary atresia, double inlet left ventricle, heterotaxy and others) are the focus of this dedicated clinic. Infants are enrolled in this clinic prior to leaving the hospital after their first stage of surgery/intervention. They are followed closely in this specialty clinic until they undergo the second stage of surgery (usually the Bidirectional Glenn procedure). The clinic is multidisciplinary, including pediatric cardiologists, nurse care coordinators, dieticians and other specialists as needed. Neurodevelopmental evaluations are performed in Pediatric Neurology clinic for children with single ventricles.
In addition to the outpatient clinic, all children are followed in our home monitoring system, allowing tracking of key indicators of well-being while the babies are at home. This program forms a partnership between parents and the medical team. The single ventricle program participates in the National Pediatric Cardiology-Quality Improvement Collaborative (NPC-QIC), a consortium of over 56 U.S. cardiac centers. The NPC-QIC develops evidence-based guidelines to improve quality of life and survival in patients with single-ventricle congenital heart disease.
What We Treat
All infants with single ventricle hearts during approximately the first 6 months of their lives – from newborn hospital discharge through second stage of surgical palliation.
- Carol Kopkas, RN
- Christina Detallo, RD