Inherited Cardiovascular Disease (or ICVD) is an umbrella term to describe several cardiac conditions that may be inherited or passed down from parents to child. As part of the Cardiovascular Genetics program, the ICVD Clinic specializes in the care of children with inherited and congenital heart disease and identifying genetic causes of these conditions in families.
Our mission is to take a family-centered approach as we bring together a comprehensive multidisciplinary team to provide:
- Multidisciplinary care: Our team takes a multidisciplinary approach to your child’s care and works with many different specialties within Cleveland Clinic, including pediatric thoracic surgery, pediatric orthopedics, pediatric psychology, genetics and more.
- Family-centered approach: We understand the importance of taking a family-centered approach to your child’s care and oversee family screenings, medical management, surgical management and sports and lifestyle management and exercise prescription.
- Collaboration with adult cardiology: Often it's important to have the entire family screened so our team works closely with the adult program at Cleveland Clinic to provide efficient family screenings.
- Genetic counseling: Genetic counselors are essential members of the team and facilitate the process of identifying gene markers for these diagnoses.
What We Treat
Diagnoses seen within the Inherited Cardiovascular Disease Clinic include the following:
Pediatric and Adult Congenital Heart Center
- Jeffrey Bennett, MD, PhD, Director, Cardiovascular Genetics
- Kenneth Zahka, MD
- Nicole Rush, CNP
- Meg Leone, BSN, RN
Cardiovascular Clinical Genetics
- Joseph Liu, MS, CGC
Learn more about Cardiovascular Clinical Genetics.
Interprofessional Team Members
We also closely partner with various specialties within Cleveland Clinic Children’s, along with cardiology specialists in the Heart, Vascular & Thoracic Institute, to provide your child with an individualized, comprehensive plan to meet all their healthcare needs.
To make an appointment, please call 216.445.5000.
- After obtaining a formal referral from your existing medical team, instantly book an appointment through MyChart.
- Need to cancel or reschedule? View your upcoming appointments and make any changes you need.
Mon. - Fri., 8 a.m. - 5 p.m. (ET)
Call 216.445.5000 or email firstname.lastname@example.org
Before Your Appointment
Our team will discuss with you the best way to obtain your records for our review prior to your appointment. Depending on your unique situation we may be able to view your records electronically via our EPIC and Care Everywhere systems or may need to request that your records be faxed and/or mailed to our office. These records may include your medical history, test results and films (echocardiogram, right heart catheterization, ultrasound, chest X-ray, MRI, CT scan, etc.).
Request information from other facilities to be released to Cleveland Clinic:
After talking with our team, you may need to give Cleveland Clinic access to outside medical records, you will need to authorize release from your current medical provider(s). Our team may ask you to complete the form and send it to your non Cleveland Clinic provider for processing.
- Authorization for the Release of Medical Information From Other Healthcare Facilities
- Authorization for the Release of Medical Information From Other Healthcare Facilities (Spanish)
What to Expect at your Appointment
Whether you are coming from around the corner or around the world, you want to know what to expect before, during and after your visit with us. If you have any questions while reviewing this information, please contact us. We are happy to answer any questions you may have.
Prior to your initial appointment, our Nurse Care Coordinator will call you. During this phone call, they will gather information including medical history, family history, previous pertinent testing, and your main concern or goals for this visit. Please see the appointment tab for additional information on obtaining medical records.
During your initial visit, you will with meet with our cardiovascular genetic team to review your medical history and records, perform a physical exam, and advise on consultations with other specialists. If additional testing or consultations are recommended, our team will help to coordinate these visits with you along with a follow up visit.
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- Providing a support network for individuals, parents, and families affected by Loeys-Dietz syndrome.
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