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Patient Stories

Patient Stories

Patient Stories

Trey in hospital and Trey playing baseball

‘Cornstarch Keeps My Son Alive’: Boy Eats Raw Cornstarch Daily To Manage Rare Metabolic Disorder

Oct 8, 2026

“When Trey was first diagnosed with this condition, I thought it just meant he wasn't going to have cake on his first birthday, but we soon realized it was much more serious than that.”
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Cleveland Clinic doctors diagnosed Dee Dee with a rare cerebrospinal fluid (CSF) leak, a condition that is often difficult to identify and frequently mistaken for migraines or other headache disorders.

Woman's Debilitating Headaches Traced to Rare Spinal Fluid Leak

Oct 6, 2026

“They listened to me, did their due diligence and ultimately cured me.”
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Ariella underwent treatment for desmoplastic small round cell tumor at Cleveland Clinic Children's.

Young Girl Overcomes Rare Cancer That Spread to Her Lungs and Spine

Sep 30, 2026

“We don't know what life will bring, but we trust God won't give us more than we can handle. Now, we try to focus on today.”
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