The American Academy of Dermatology
P.O. Box 4014
Schaumburg, IL 60168-4014
Phone: 888.462.DERM (3376)
The American Academy of Dermatology is a professional organization of dermatologists. The website offers patient information on dermatology topics, publications, and help in finding a dermatologist.
American Cancer Society
250 Williams Street NW
Atlanta, Georgia, 30303
Phone: 800.ACS (227).2345
The American Cancer Society is a national organization dedicated to cancer education, prevention, and research. Services include patient information, patient advocacy, and community programs.
American Skin Association
6 East 43rd Street, 28th Floor
New York, NY 10017
Phone: 212.889.4858 or 800.499.SKIN
The American Skin Association is collaboration of patients, families, advocates, physicians and scientists whose aim is to advance research and drive public awareness of skin disease.
Children’s Skin Disease Foundation
1600 S Main St # 192
Walnut Creek, CA 94596
The Children’s Skin Disease Foundation (CSDF) is a non-profit organization created to improve the quality of life of children with skin disease. The organization offers financial assistance, scholarships, a weeklong camp experience through Camp Wonder, and wish fulfillment programs for affected children.
The Foundation for Ichthyosis & Related Skin Types
2616 N. Broad Street
Colmar, PA 18915
The Foundation for Ichthyosis & Related Skin Types (FIRST) is a non-profit charitable organization founded with the mission to improve lives and seek cures for those affected by ichthyosis and related skin types. The organization offers information, education, and support services to its global membership of persons affected with ichthyosis and their families.
Lupus Foundation of America, Inc.
2121 K Street NW, Suite 200
Washington, DC 20037
The Lupus Foundation of America supports research and public education of lupus, and also offers support to lupus patients and their families. Its website offers patient education, publications, and research updates.
The National Alopecia Areata Foundation
65 Mitchell Boulevard, Suite 200-B
San Rafael, CA 94903
The National Alopecia Areata Foundation (NAAF) is a nonprofit organization that was founded to serve the community of people affected by alopecia areata. NAAF serves its constituents in three primary program areas: support, awareness, and advocacy. It also supports research to find a treatment or cure.
National Eczema Association
4460 Redwood Highway Suite 16D
San Rafael, CA 94903-1953
Phone: 415.499.3474 or 800.818.7546
The National Eczema Association (NEA) is a national, patient-oriented organization working to improve the health and the quality of life of all persons living with atopic dermatitis/eczema. NEA provides emotional support, information, and resources to those who have the disease as well as their loved ones, while raising public awareness of the disease. In addition, NEA supports patients through public advocacy and research efforts.
The National Psoriasis Foundation
6600 SW 92nd Ave., Suite 300
Portland, OR 97223-7195
Phone: 800.723.9166 or 503.244.7404 or 800.723.9166
The National Psoriasis Foundation advocates for patients with psoriasis via education and research support. The website includes information about treatment, research updates, and a physician directory.
The National Rosacea Society
196 James Street
Barrington, IL 60010
Phone: 888. NO-BLUSH
The National Rosacea Society provides awareness, public health information, newsletters, physician information, and research support.
National Vitiligo Foundation
Cornell Park Drive, Suite 207
Cincinnati, Ohio 45242
Phone: 513.793.NVFI (6834)
The National Vitiligo Foundation's mission is to increase public awareness of vitiligo, counsel patients and their families, and support research into vitiligo.
The Scleroderma Research Foundation
220 Montgomery Street, Suite 1411
San Francisco, CA 94104
The Scleroderma Research Foundation supports research and public education. The website includes a newsletter, patient information, and information on clinical trials into scleroderma.
The Skin Cancer Foundation
149 Madison Ave, Suite 901
New York, NY 10016
The Skin Cancer Foundation's mission is to provide information about skin cancer, (including public and physician education campaigns), encourage detection, and sponsor research. The website offers information on skin cancer, sun safety, and examining the skin for cancer.
The Sturge-Weber Foundation
P.O. Box 418
Mount Freedom, New Jersey 07970
Phone: 973.895.4445 or 800.627.5482
The Sturge-Weber Foundation (SWF) is an organization for people who have port wine stains, Sturge-Weber Syndrome, and Klippel-Trenaunay Syndrome (red-purple birthmarks involving blood vessels). For patients and families, the SWF offers information and educational materials (including a newsletter, textbooks, and coloring books). The SWF also sponsors research into these conditions.
Turberous Sclerosis Alliance
801 Roeder Road, Suite 750
Silver Spring, Maryland 20910-4487
The Tuberous Sclerosis Alliance (TSA) is dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected by tuberous sclerosis complex. The organization provides information, support services and resource information for those affected.
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This information is provided by the Cleveland Clinic and is not intended to replace the medical advice of your doctor or health care provider. Please consult your health care provider for advice about a specific medical condition. This document was last reviewed on: 1/20/2017...#12154