Such as Syncope, Dysautonomia and Postural Tachycardia Syndrome
American Autonomic Society
www.americanautonomicsociety.org
Dysautonomia Foundation, Inc.
315 W. 39th St., Suite 701
New York, NY 10018
212.279.1066
E-mail: info@famdys.org
www.familialdysautonomia.org
Dysautonomia Information Network
P.O. Box 55, Brooklyn, MI 49230
E-mail: staff@dinet.org
www.dinet.org
Dysautonomia Youth Network of America, Inc. (DYNA)
301.705.6995
E-mail: info@dynakids.org
www.dynakids.org
Familial Dysautonomia Hope Foundation
121 S. Estes Dr., Suite 205D
Chapel Hill, NC 27514
919.969.6636
E-mail: info@fdhope.org
National Dysautonomia Research Foundation
P.O. Box 301, Red Wing, MN 55066-0301
651.267.0525
www.ndrf.org
Center for Syncope and Autonomic Disorders
216.444.5828 or 800.223.2273, ext. 45828
National Institute of Neurological Disorders and Stroke
NIH Neurological Institute
P.O. Box 5801, Bethesda, MD 20824
800.352.9424 or 301.496.5751
TTY: 301.468.5981
National Organization for Rare Disorders (NORD)
55 Kenosia Ave., P.O. Box 1968
Danbury, CT 06813-1968
203.744.0100
800.999.6673 (voicemail only)
TTY: 203.797.9590
E-mail: RN@rarediseases.org
www.rarediseases.org
Syncope Trust and Reflex Anoxic Seizures (STARS)
P.O. Box 5507
Hilton Head Is., SC 29938
843.785.4101
E-mail: rsmith@stars-us.org
www.stars-us.org
