There are local and national associations as well as support groups devoted to providing information and emotional support for people with amyotrophic lateral sclerosis (ALS) and their families.
What national organization supports ALS?
ALSA is the only national, not-for-profit health organization dedicated solely to the cause of ALS through research, patient support, information distribution, and public awareness. There are also several regional chapters of ALSA. ALSA’s services include:
- Funding research to find the cause, means of prevention and possible cure of ALS.
- Serving as a national ALS information center for health care professionals, patients and their families.
- Providing state-of-the-art care management through its nationwide network of ALS Centers.
- Offering referrals for counseling, education and support on coping with the disease through the nation-wide ALSA network of local volunteer chapters and support groups.
National ALS Association
21021 Venture Boulevard, Suite 321
Woodland Hills, CA 91364
What local organizations support ALS?
The ALS Association Northern Ohio Chapter serves ALS patients and families in 32 Ohio counties. Local Chapter services and activities include:
- Information on ALS, current research and treatment.
- Telephone consultation through an ALS Nurse consultant.
- A loan bank which lends medical equipment and assistive devices (upon availability) to ALS patients.
- Support groups for patients and families to assist with coping and managing ALS.
Call or write at:
ALS Association Northeast Ohio Chapter
2500 East 22nd Street
Cleveland, OH 44115-9907
The ALS Center at Cleveland Clinic specializes in promoting every ALS patient’s quality of life. The goal of the ALS Center is to provide the most comprehensive care possible by:
- Supporting patients’ need for independence and helping them function successfully on their own.
- Seeking and retaining staff and support personnel skilled in the management of ALS.
- Continuing research efforts to find a cure for ALS.
To contact The ALS Center, please call or write:
Center for ALS and Related Disorders
Department of Neurology, S-90
9500 Euclid Avenue
Cleveland, OH 44195-5227