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Patient Stories

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Patient Stories

Patient Stories

Lucia and her mother spent nearly two decades before learning Lucia had a rare disease.

Young Woman Receives Rare Disease Diagnosis After Decades of Searching

Feb 27, 2026

“I didn’t really trust doctors anymore. I didn’t think they’d find anything either. So, when they did, I was happy. It had taken almost 20 years.”
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Princess Williams

They Were My Angels: How Two Surgeons Helped Princess Find Relief After a Year of Unanswered Pain

Feb 26, 2026

“They were my angels. They didn’t have to do it on that day. But I was in so much pain that they agreed to come in the day after Thanksgiving to do my surgery.”
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Dr. Christopher Benton, father to five children all under age 12, first learned he had a bicuspid aortic valve more than 20 years ago while in medical school.

Complex Heart Surgery Gives Physician New Lease on Life

Feb 23, 2026

“This experience has been one of the greatest of my life. Going through a medical challenge builds character, fortitude, bravery, and a greater appreciation for what my own patients go through.”
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