A seizure is an abnormal movement or behavior caused by unusual electrical activity in the brain. In contrast, epilepsy is a group of related disorders marked by recurrent seizures over a prolonged period of time, with no identifiable short-term cause. Although seizures are a symptom of epilepsy, not all people who have seizures have epilepsy. These resources can help you and your child learn more about seizures and epilepsy.

National Organizations

American Brain Tumor Association

2720 River Road Des Plaines, IL 60018

Phone: 800.577.8750

Careline: 800.886.2282

www.abta.org

American Epilepsy Society

342 N Main St # 301

West Hartford, CT 06117

Phone: 312.833.3800

www.aesnet.org

The Arc of the United States (formerly the Association of Retarded Citizens)

1825 K Street, NW suite 1200

Washington DC 20006

Phone: 800.443.5255

www.thearc.org

Autism Society of America

7910 Woodmont Avenue, Suite 300

Bethesda, MD 20814-3067

Phone: 1800.328.8476

www.autism-society.org

Brain Injury Association of America

8201 Greensboro Drive, Suite 611

McLean, VA 22102

Phone: 703.761.0750

www.biausa.org

Council for Exceptional Children (CEC)

1110 North Glebe Road, Suite 300

Arlington, VA 22201

Phone: 703.620.3660

TTY: 866.915.5000

FAX: 703.264.9494

www.cec.sped.org

Epilepsy Foundation

8301 Professional Place, Suite 200

Landover, MD 20785

Phone: 800.332.1000

www.epilepsyfoundation.org

Learning Disabilities Association

4156 Library Road

Pittsburgh, PA 15234-1349

Phone: 412.341.1515

Fax: 412.344.0224

Head Start Bureau Administration on Children, Youth and Families U.S. Department of Health & Human Services

370 L'Enfant Promenade SW

Washington, D.C. 20447

www.acf.hhs.gov/programs/ohs

National Center for Learning Disabilities (NCLD)

32 Laight St, 2nd floor

New York, NY 10016

888.575.7373

www.ncld.org

National Information Center for Children and Youth with Disabilities (NICHCY)

P.O. Box 1492

Washington, DC 20013

Phone/TTY: 800.695.0285

E-mail: nichcy@aed.org

National Information System for Infants with Disabilities and Life-Threatening Conditions

Phone: 800.922.9234

National Institute of Neurological Disorders and Stroke/

National Institutes of Health

9000 Rockville Pike

Bethesda, MD 20892

Phone.800.352.9424

www.ninds.nih.gov/

National Respite Locator Service

800 Eastowne Dr., Suite 105

Chapel Hill, NC 27514

Phone: 919.490.5577

National Tuberous Sclerosis Association

8000 Corporate Drive, Suite 120

Landover, Maryland 20785

Phone: 800.225.6872

Fax: 301.459.0394

www.tsalliance.org

Social Security Administration

Phone: 800.772.1213

TTY: 800.325.0778

www.socialsecurity.gov

Special Olympics

1133 19th Street, NW

Washington, DC 20036

Phone: 202.628.3630

Fax: 202.824.0200

www.specialolympics.org

United Cerebral Palsy Association

1660 L Street NW, Suite 700

Washington, DC 20036

Phone: 800.872.5827

Fax: 202.776.0406

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