Bone Marrow Transplant Resources
Getting in touch with community services might be helpful to you and your family. These organizations and programs represent just some of the resources available to you. Individual counseling with a social worker is also available and might be useful in helping you cope with the demands of treatment. Please contact your social worker if you need more assistance.
Cleveland Clinic Web site: www.clevelandclinic.org
Cleveland Clinic’s Web site provides an online Health Information Center where you can look up a variety of topics, including a physician directory. For additional Web sites and resource information specific to the Taussig Cancer Center and the Social Work Department, go to www.clevelandclinic.org/socialwork/cancercenterresources.htm
ExploreBMT is a great place to start when you are looking for information and support about blood and marrow transplantation. You can use ExploreBMT, an easy-to-search web portal, to browse resources and services from many respected organizations. You can then connect to the resources that you need most throughout your transplant journey, from diagnosis through survivorship.
Cleveland Clinic Cancer Answer Line: 1.800.862.7798 - Oncology clinical nurse specialists and their staff can provide information and answer questions about cancer.
Reflections at Cleveland Clinic: 216.444.3527 or 1.800.223.2273 ext. 43527
The is a free service to patients undergoing cancer treatment. Sessions are private with a licensed aesthetician and include: one-hour facial, massage, make-up application with instruction, Reiki for relaxation, guided imagery, and reflexology.
Healing Services: 216.445.9543 or 59543 from your bedside phone.
A free service offered at the Cleveland Clinic, Healing Services, supports your well being during your hospital stay by offering complimentary services to naturally help you relax and heal. They offer the following services to both patients and family:
- Reiki, Healing Touch Light Massage (10 Minutes with physician approval)
- Guided Imagery
- Spiritual Counseling
- Personal aromatherapy
The Gathering Place-East
23300 Commerce Park
The Gathering Place-West
800 Sharon Drive
Westlake, OH 44145
The mission of the Gathering Place is to support, educate, and encourage people working to overcome the effects of cancer in their lives. All programs and services are provided free of charge.
Center for Body, Mind & Spirit
41201 Schaden Road
Elyria, OH 44035
Offers extensive support services designed to complement cancer treatment and enhance quality of life by focusing on the psychological, emotional, spiritual, and social aspects of healing.
Stewart's Caring Place
2955 W. Market Street
Akron, OH 44333
Offers support, information, and an array of programs and services to families and individuals touched by cancer. All services are free of charge.
The Victory Center
5532 West Central Avenue, Suite B
Toledo, OH 43615
Provides non-medical support services to individuals living with cancer, in support of their pursuit of recovery and to promote education and prevention techniques for healthy living.
Cancer & Disease Specific Organizations
The Leukemia and Lymphoma Society
1311 Mamaroneck Ave.
White Plains, NY 10605
1.800.955.4572 or 914.949.5213
The Leukemia and Lymphoma Society
Northern Ohio Chapter
23297 Commerce Park Road
Beachwood, OH 44122
Services include health education, peer-to-peer support, support groups, and patient financial aid for certain treatment-related expenses. It supports cancer research and provides information and support to patients with leukemia, lymphoma, and multiple myeloma.
BMTinfonet (Blood and Marrow Transplant Information Network)
2310 Skokie Valley Road, Suite 104
Highland Park, IL60035
1.888.597.7674 Fax: 847.433.4599
BMT Infonet provides parents, survivors and their loved ones with emotional support and high quality, easy to understand information about bone marrow, peripheral blood stem cell and cord blood transplants.
nbmtLink (National Bone Marrow Transplant Link)
20411 W. 12 Mile Road, Suite 108
Southfield, MI 48076
The mission of the National Bone Marrow Transplant Link is to help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services.
The Multiple Myeloma Research Foundation
P. O. Box 613
Annapolis, MD 21404-0613
Provides information about multiple myeloma. Funds myeloma specific research.
Aplastic Anemia & MDS International Foundation, Inc.
383 Main Avenue, 5th Floor
Norwalk, CT 06851
A patient advocate and support organization providing hope, knowledge, and support to patients and families. Offers the expertise of medical experts, scientific researchers, doctors, nurses, counselors, information specialists, government agencies, political advocates, and pharmaceutical companies.
Lance Armstrong Foundation
2201 E. Sixth Street
Austin, Texas 78702
877.236.8820 or for Cancer Support call: LIVESTRONG SurvivorCare 866.673.7205
We empower the cancer community to address the unmet needs of cancer survivors. To do so we encourage collaboration, knowledge-sharing and partnership. Then, we develop evidence-based solutions to address both the common and unique problems survivors are facing around the world.
CancerCare is a national nonprofit, 501(c)(3) organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs--including counseling and support groups, education, financial assistance and practical help--are provided by professional oncology social workers and are completely free of charge.
National Marrow Donor Program (NMDP) Also known as Be the Match Registry
3001 Broadway Street NE, Suite 100
Minneapolis, MN 55413-1753
1.800.526.7809 or 612.627.5800
1.800.MARROW2 (Donor Information)
This program facilitates marrow and blood stem cell transplants for patients who do not have a matched donor in their family. It is a network of national and foreign donation centers, collection centers, transplant centers, and minority recruitment groups.
Office of Patient Advocacy
Assists patients who lack funding for unrelated donor search and/or procurement.
Lymphoma Research Foundation
New York Office
115 Broadway, 13th Floor
New York, NY 10006
Phone: 212. 349.2910, 800.235.6848
Los Angeles Office
8800 Venice Blvd. Suite 207
Los Angeles, CA 90034
Phone: 310.204.7040 800.500.9976
The Lymphoma Research Foundation (LRF) is the nation’s largest lymphoma-focused voluntary health organization devoted exclusively to funding lymphoma research and providing patients and health care professionals with critical information on the disease. LRF’s mission is to eradicate lymphoma and serve those touched by this disease.
American Cancer Society
1599 Clifton Rd., NE
Atlanta, GA 30329
1.800.227.2345 or 404.320.3333
This organization supports cancer research, conducts educational programs, "Look Good, Feel Better," to patients and families. It also provides free printed information about cancer.
Online & Telephone Communication Resources
Public Knowledge Systems, LLC
P. O. Box 111586
Anchorage, AK 99511-1586
1.877.725.1500 or 1.907.646.4523
This Web site keeps family and friends updated on the patient's condition. Family and friends can write messages to patients. It requires a secured password to protect patient confidentiality.
Lotsa Helping Hands
A simple, immediate way for friends, family, colleagues, and neighbors to assist loved ones in need. It's an easy-to-use, private group calendar, specifically designed for organizing helpers, where everyone can pitch in with meal delivery, rides, and other tasks necessary for life to run smoothly during a crisis.
A Web site designed to help patients keep in touch with loved ones during treatment. Patients create their own web page free of charge. News about the patient's progress can be posted to keep loved ones informed.
A national LIVESTRONG initiative dedicated to providing reproductive information, support, and hope to cancer patients and survivors whose medical treatments present the risk of infertility.
4th Angel Mentoring Program
216.445.8734 or 1.800.223.2273, ext. 52573
A program of the Cleveland Clinic Scott Hamilton CARES Initiative that offers one-on-one, confidential outreach and support from other cancer survivors. Specially trained volunteer cancer survivors offer comfort, reassurance, information, coping techniques, and practical advice.
First Connection through the Leukemia and Lymphoma Society is a peer-to-peer telephone support program linking patients and their families with a trained volunteer who has experienced a similar situation.
Children & Family
Kids Konnected provides complimentary counseling, summer camps, bereavement workshops and cancer educational tools for children and teens with a parent with cancer, or who have lost a parent to cancer. Kids Konnected was founded on the premise that when a parent gets cancer, the entire family is affected, especially the children.
This program provides age-appropriate support and tools to help children and parents cope with a parent's diagnosis and treatment of cancer. Addresses the needs of children ages 4 to 12.
Ulman Cancer Fund for Young Adults
410.964.0202 or 1.888.393-FUND
Provides support programs, education and resources, free of charge, to benefit young adults, their families and friends who are affected by cancer and to promote awareness and prevention of cancer. Also has a national college scholarship program.
This is a community of young adults with cancer who share insights, explore fears, and approach cancer with a sense of humor.
I’m too (young) for this (iy)
Helps to decrease isolation of adolescents and young adults with cancer by providing information on resources, support organizations, scholarships and financial aid, online forums and chat rooms, excursions, camps and retreats, young adult blogosphere, coping literature, advocacy tools, and more!
The Stupid Cancer Show
The voice of young adults with cancer
Live weekly streaming interactive, unscripted, unrehearsed, unapologetic show for young adults with cancer.
Social Security Administration
Contact your local office or 1.800.772.1213
If a person is likely to be unable to work for 12 months while undergoing treatment, applying for Social Security Disability is an option.
Ohio Department of Insurance
2100 Stella Court
Columbus, OH 43215
Cancer and Careers
A resource for working women with cancer.
Patient Advocate Foundation
700 Thimble Shoals Blvd, Suite 200
Newport News, VA 23606
1.800.532.5274 or 757.873.6668
This serves as an active liaison between the patient and his or her insurer, employer, or creditors to resolve insurance, job discrimination, and/or debt crisis matters relative to their diagnosis.
Centers for Medicare & Medicaid Services (CMS)
Provides helpful information about Medicare, Medicare health plans, prescription drug plans, and consumer rights and protections.
Ohio Medicaid Consumer Hotline can direct you to your local Office of Job & Family Services
A State and Federally funded health care coverage plan providing assistance to certain low-income and medically vulnerable people. Ohioans eligible for Medicaid are entitled to all medically necessary services.
Medicare Rights Center
212.869.3850 or 202.544.5561
The largest independent source of health care information and assistance in the United States for people with Medicare. Services include enrollment projects, telephone hotline services, education department, public policy efforts, and media communications.
This site lists pharmaceutical manufacturers who provide drugs free of charge to patients with limited financial resources.
Partnership for Prescription Assistance
www.phrma.org (see patient assistance programs)
This site brings together America’s pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that’s right for them. Many will get them free or nearly free.
Volunteers in Health Care:1.877.844.8442
This provides information about public and private pharmaceutical patient assistance programs, including drug discount cards.
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This information is provided by the Cleveland Clinic and is not intended to replace the medical advice of your doctor or health care provider. Please consult your health care provider for advice about a specific medical condition. This document was last reviewed on: 5/15/2011...#3985