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Treatments & Procedures

Bone Marrow Transplant Resources

Getting in touch with community services might be helpful to you and your family. These organizations and programs represent just some of the resources available to you. Individual counseling with a social worker is also available and might be useful in helping you cope with the demands of treatment. Please contact your social worker if you need more assistance.

Cancer & Disease Specific Organizations

BMT infonet (Blood and Marrow Transplant Information Network)
http://www.bmtinfonet.org

BMT Infonet provides parents, survivors and their loved ones with emotional support and high quality, easy to understand information about bone marrow, peripheral blood stem cell and cord blood transplants.

nbmtLink (National Bone Marrow Transplant Link)
http://www.nbmtlink.org/

The mission of the National Bone Marrow Transplant Link is to help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services.

The Multiple Myeloma Research Foundation
http://www.themmrf.org

Provides information about multiple myeloma. Funds myeloma specific research.

Aplastic Anemia & MDS International Foundation, Inc.
http://www.aamds.org

A patient advocate and support organization providing hope, knowledge, and support to patients and families. Offers the expertise of medical experts, scientific researchers, doctors, nurses, counselors, information specialists, government agencies, political advocates, and pharmaceutical companies.

LiveStrong Foundation
http://www.LIVESTRONG.org

We empower the cancer community to address the unmet needs of cancer survivors. To do so we encourage collaboration, knowledge-sharing and partnership. Then, we develop evidence-based solutions to address both the common and unique problems survivors are facing around the world.

Cancercare
http://www.cancercare.org

CancerCare is a national nonprofit, 501(c)(3) organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs--including counseling and support groups, education, financial assistance and practical help--are provided by professional oncology social workers and are completely free of charge.

National Marrow Donor Program (NMDP) Also known as Be the Match Registry
http://www.marrow.org

This program facilitates marrow and blood stem cell transplants for patients who do not have a matched donor in their family. It is a network of national and foreign donation centers, collection centers, transplant centers, and minority recruitment groups.

ExploreBMT
http://www.explorebmt.org

ExploreBMT, a website sponsored by Be the Match, is a great place to start when you are looking for information and support about blood and marrow transplantation. You can use ExploreBMT, an easy-to-search web portal, to browse resources and services from many respected organizations. You can then connect to the resources that you need most throughout your transplant journey, from diagnosis through survivorship.

Lymphoma Research Foundation
http://www.lymphoma.org

The Lymphoma Research Foundation (LRF) is the nation’s largest lymphoma-focused voluntary health organization devoted exclusively to funding lymphoma research and providing patients and health care professionals with critical information on the disease. LRF’s mission is to eradicate lymphoma and serve those touched by this disease.

Online & Telephone Communication Resources

The Status.com
http://www.thestatus.com

This Web site keeps family and friends updated on the patient's condition. Family and friends can write messages to patients. It requires a secured password to protect patient confidentiality.

Lotsa Helping Hands
http://www.lotsahelpinghands.com

A simple, immediate way for friends, family, colleagues, and neighbors to assist loved ones in need. It's an easy-to-use, private group calendar, specifically designed for organizing helpers, where everyone can pitch in with meal delivery, rides, and other tasks necessary for life to run smoothly during a crisis.

Caringbridge
http://www.caringbridge.org

A Web site designed to help patients keep in touch with loved ones during treatment. Patients create their own web page free of charge. News about the patient's progress can be posted to keep loved ones informed.

Fertility

Fertile HOPE
http://www.fertilehope.org

A national LIVESTRONG initiative dedicated to providing reproductive information, support, and hope to cancer patients and survivors whose medical treatments present the risk of infertility.

Children & Family

Kidskonnected.org
http://www.kidskonnected.org

Kids Konnected provides complimentary counseling, summer camps, bereavement workshops and cancer educational tools for children and teens with a parent with cancer, or who have lost a parent to cancer. Kids Konnected was founded on the premise that when a parent gets cancer, the entire family is affected, especially the children.

Bear Essentials
http://www.bear-essentials.org

This program provides age-appropriate support and tools to help children and parents cope with a parent's diagnosis and treatment of cancer. Addresses the needs of children ages 4 to 12.

Young Adult

Ulman Cancer Fund for Young Adults
http://www.ulmanfund.org

Provides support programs, education and resources, free of charge, to benefit young adults, their families and friends who are affected by cancer and to promote awareness and prevention of cancer. Also has a national college scholarship program.

Planet Cancer
http://myplanet.planetcancer.org

This is a community of young adults with cancer who share insights, explore fears, and approach cancer with a sense of humor.

Stupid Cancer
http://www.stupidcancer.org

Helps to decrease isolation of adolescents and young adults with cancer by providing information on resources, support organizations, scholarships and financial aid, online forums and chat rooms, excursions, camps and retreats, young adult blogosphere, coping literature, advocacy tools, and more!

Financial/Insurance

Social Security Administration
http://www.ssa.gov

If a person is likely to be unable to work for 12 months while undergoing treatment, applying for Social Security Disability is an option.

Ohio Department of Insurance
http://www.ins.state.oh.us/

Cancer and Careers
http://www.cancerandcareers.org

A resource for working women with cancer.

Centers for Medicare & Medicaid Services (CMS)

  • Medicare
    1.800.MEDICARE (1.800.633.4227)
    http://www.medicare.gov

    Provides helpful information about Medicare, Medicare health plans, prescription drug plans, and consumer rights and protections.

  • Medicaid
    1.800.324.8680

    Ohio Medicaid Consumer Hotline can direct you to your local Office of Job & Family Services

    A State and Federally funded health care coverage plan providing assistance to certain low-income and medically vulnerable people. Ohioans eligible for Medicaid are entitled to all medically necessary services.

Medicare Rights Center
http://www.medicarerights.org

The largest independent source of health care information and assistance in the United States for people with Medicare. Services include enrollment projects, telephone hotline services, education department, public policy efforts, and media communications.

Medication Assistance

Needy Meds
http://www.needymeds.org

This site lists pharmaceutical manufacturers who provide drugs free of charge to patients with limited financial resources.

Rx Assist
http://www.rxassist.org

This provides information about public and private pharmaceutical patient assistance programs, including drug discount cards.

Rx for Ohio
http://www.rxforohio.org

A Web site designed to help low-income, uninsured Ohio residents get free or discounted brand-name medicines.

Complementary and Alternative Medicine Health Journeys

The Guided Imagery Resource Center
http://www.healthjourneys.com

National Center for Complementary and Alternative Medicine (NCCAM) http://www.nccam.nih.gov/

The Center for Integrative Medicine at the Cleveland Clinic
216.986.HEAL (4325)
http://www.clevelandclinic.org

Practitioners that address lifestyle, emotional, spiritual as well as physical needs. Provides educational programs for patients and staff. Works towards improving quality of life by integrating practices that address the needs of the whole person.

Fund-Raising Organizations

National Foundation for Transplants
1102 Brookfield - Suite 200
Memphis, TN 38119
1.800.489.3863 or 901.684.1697
http://www.transplants.org

Help Hope Live
Suite 230, 3475 West Chester Pike
Newtown Square, PA 19073
1.800.642.8399 or 610.353.9684
http://www.helphopelive.org

BMT Support Groups

Support groups provide a very useful sharing experience. They offer an environment where you can learn new ways of dealing with your illness. You might want to share approaches you have discovered with others. You will also gain strength in knowing you are not facing hardships alone.

  • Post-Transplant Preparation Group
    This inpatient education group meets on the first Wednesday of the month in the G110 lounge. This group is facilitated by a social worker and nurse coordinator from the Program and provides necessary information to prepare patients and caregivers for care after transplant. Contact Jane Dabney, LISW-S, at 216.445.2483 or 1.800.223.2273 ext. 52483.
  • Living with Blood or Marrow Transplant
    The Leukemia & Lymphoma Society sponsors this quarterly group for adults who have undergone a transplant. Participants learn the latest information and have an opportunity to discuss the unique issues faced by those who have had a transplant. Family members are welcome. Contact Linda McLellan, LISW-S, at 216.444.5079 or 1.800.223.2273, ext. 45079, or the Leukemia & Lymphoma Society at 1.800.589.5721.

Lodging Information

For lodging suggestions, please see the “Visitors Travel Guide to University Circle and Downtown Cleveland.”

Hope Lodge
OhioACS@cancer.org

The American Cancer Society’s Hope Lodge is a unique option for adults who need temporary, no-cost accommodations while receiving outpatient cancer treatment and who live a distance from Cleveland.

The Hope Lodge is located about 1 mile away from Cleveland Clinic. Oncology patients and their adult care-partners can stay here while receiving treatment in Cleveland. Patients must have a care-partner stay with them at Hope Lodge. Your social worker can place you on the waiting list for this facility. If you do plan to stay at Hope Lodge, it is recommended that you make back-up lodging arrangements because there is a waiting list, and room availability will not be known until just before your treatment begins.

Cleveland Clinic also offers a discounted rate for transplant patients at Cleveland Clinic’s Guest House Hotel. The cost for this option is $60 per night plus tax. The reservation line is 216.707.4000 or 877.707.8999.

For additional lodging information, visit Cleveland Clinic’s Web site at http://www.clevelandclinic.org, click on “Patients and Visitors” and then “Parking, Lodging & Transportation.

© Copyright 1995-2014 The Cleveland Clinic Foundation. All rights reserved

This information is provided by the Cleveland Clinic and is not intended to replace the medical advice of your doctor or health care provider. Please consult your health care provider for advice about a specific medical condition. For additional health information, please contact the Center for Consumer Health Information at the Cleveland Clinic (216) 444-3771 or toll-free (800) 223-2273 extension 43771. If you prefer, you may visit www.clevelandclinic.org/health/ or www.clevelandclinicflorida.org. This document was last reviewed on: 7/15/2014... index#3985