The Department of Physical Medicine and Rehabilitation is a full participant in the Knowledge Program©, sponsored by Cleveland Clinic's Neurological Institute.
The patient reported outcomes (PRO) process currently employs conventional test theory, with validated measures of health, function and quality of life. The Knowledge Program©'s Query Tool software allows research access to nearly 1.5 million patient encounters. Selected outcomes measurement is a part of every patient encounter. These outcomes are logged into the database adjacent to a wide array of discrete clinical and descriptive data (demographics, medications, radiology testing, site of care, etc).
Data collection is carried out through the pre-appointment delivery of PRO packages, completed by the patient or their surrogate, either in the waiting room (via tablet computer) or at home via a secure internet link. Over 30 different outcome measurement tools are utilized.
Our current efforts aim to:
- Demonstrate the acceptance and utility of a pre-visit digital outcomes measurement system in a rehabilitation clinic that serves patients who are disabled from a wide range of medical conditions.
- Determine whether subgroups in the rehabilitation clinic have different profiles with respect to existing, validated measures of quality of life and depression.
- Promote the widespread acceptance of patient reported outcomes measures in the field of Physical Medicine and Rehabilitation.
- Promote the use of Computer Adapted Testing and Item Response Theory strategies for use in rehabilitation research, allowing greater precision in measurement and reduced burden for the respondent.
- Integrate the discreet data in our health system-wide rehabilitation electronic medical record with the Knowledge Program©.