Our mission is to establish the optimal quality of life for the Northeast Ohio community by providing support, information, and advocacy to improve the lives of those with young onset Parkinson’s and those who care about them. We achieve our mission through public awareness, education, advocacy and supporting research until a cure is found. Our goal is to help you be informed, live well and stay strong.
About Parkinson's Disease
Parkinson's disease is a neurological disorder that affects movement. Symptoms may include slowness, rigidity, tremor, and problems with balance and posture. The symptoms of Parkinson's result from the loss of dopamine-producing cells in the brain, but the cause of cell loss is not known. Medications and surgical treatments can relieve symptoms but do not cure the disease. More than a million people in the United States have Parkinson's disease.
There are several excellent websites that provide information about Parkinson's disease and its treatment. See some of our favorites under resources.
What is “young onset?”
The average age at which Parkinson’s is diagnosed is 60. However, about 10-20% of those diagnosed with Parkinson's disease are under age 50, and about half of those are diagnosed before age 40. When the diagnosis is made early, it is referred to as "young onset" Parkinson's disease. So young onsets face different challenges than those diagnosed in their 60s and 70s.
About Our Meetings
- Frequent presentations by medical experts and others with information helpful to you
- General discussions among our members of mutual problems, concerns, and ways of living better with Parkinson’s. We stress confidentiality at all sessions to encourage greater openness.
- Occasional “Breakout Sessions” for Care Partners to discuss among themselves issues in caring for a Person with Parkinson’s. When Care Partners meet separately, those with Parkinson’s talk about their own issues.
- Exercise is a vital part of optimal living with Parkinson’s disease. To encourage it and to prevent complications from sitting too long, we have a short break mid-meeting during which we do easy exercises while seated.
- We provide refreshments at our meetings, and encourage people to arrive early to meetings to get acquainted with one another and with the informational items available.
Young Onset Parkinson's Support Group
2014 Meeting Schedule
All meetings are from 7 p.m. – 9 p.m.
|For questions about our Northeast Ohio Young Onset Parkinson’s Support Group,
please call 216.444.8860 or email us at YoungParkinsonsGroup@ccf.org
||Beachwood Family Health & Surgery Center
2014 Research Update for Parkinson's disease
||Independence Family Health Center
Jenera Scott, MS PAC
Non-Motor Complications of Parkinson’s disease
||Strongsville Family Health & Surgery Center
Fred and Dianne Discenzo
“Come Dance With Me” – a Parkinson’s Dance Program
||Beachwood Family Health and Surgery Center
Amy Chan, PT, NCS
Physical Therapy and PD
The YoungParkinsonsGroup@ccf.org email address offers interaction and networking for questions regarding the Young Onset Parkinson's Support Group through a dedicated e-mail address. Messages sent are retrieved by the YOPDSG staff who will return emails within 3-5 business days.
This email address is for general Young Onset Parkinsons Support Group-related questions. We cannot field medical questions including personal information through this email address. If you have a medical question please use the secure online form.
YOPDSG voicemail is a dedicated phone line with a confidential voice mail box available as well for interested families. Messages left on this voice mail box are retrieved on a regular basis by the YOPDSG staff who will return calls within 3-5 business days. 216.444.8860