Mission Statement
The mission of our Pediatric Epilepsy Support Group is to meet and address the needs of families who are caring for children afflicted with difficult-to-control epilepsy.
Reunion 2008
Our Pediatric Epilepsy Support Group hosted a successful reunion on Aug. 1-2 that drew 280 attendees, including members of 61 families, from throughout the country, as well as from Ireland and South Africa. This is the second reunion for children who underwent epilepsy surgery at Cleveland Clinic, as well as their families. Read more...
History
The Pediatric Epilepsy Support Group was established in fall 2003. It is intended as an avenue for families to interact with the members of the support group, as well as with each other.
Caring for a child with refractory epilepsy is not easy and families often find their emotional resources spread thin. It is even more daunting to come to the hospital for evaluation with new and sophisticated diagnostic tests, participate in discussions involving epilepsy surgery as a possible treatment option and undergo procedures such as invasive monitoring of seizures for accurate surgical planning.
The acute void of support beyond the immediate pediatric medical-care-related interactions during their stay in the hospital has been bridged with the help of the Pediatric Epilepsy Support Group. The weekly meetings of the pediatric support group have been a source of strength and comfort for the family members.
The Pediatric Epilepsy Support Group then continues to be a platform for networking interactions beyond the hospital stay and following epilepsy surgery.
This group is a 'work in progress.' Getting our pediatric patients and families through difficult times is our main focus.
Deepak Lachhwani, MBBS, MD
Director, Pediatric Epilepsy Support Group
216-445-9818
TheStatus.com are free, private, personalized Web pages available to patients and families that help you stay in touch before, during and after a hospital stay, or any time care giving is needed. The service allows you control over communication and provides an easy way for friends and loved ones to respond with messages of support.
Visit TheStatus.com to create a page!
