Adult Congenital Heart Association (ACHA)
Adult Congenital Heart Association (ACHA) is a national organization for adults, and adolescents, with congenital heart disease (CHD). The purpose of ACHA is to educate the public, adults with CHD, and the medical community about adult congenital heart issues through the development of forums, newsletters, support groups and other methods of public information.
Adult Congenital Heart Association (ACHA)
6757 Greene Street, Suite 335
Philadelphia, PA 19119-3508
Phone: 215.849.1260
Toll-free: 888.921.ACHA
Fax: 215.849.1261
American Heart Association
The American Heart Association is nonprofit organization, whose mission is to reduce disability and death from cardiovascular diseases and stroke. Volunteers and staff, work to meet these goals through supporting research, providing resources, education and support to those with heart disease or those at risk, and acting as national advocate.
American Heart Association National Center
7272 Greenville Avenue
Dallas, Texas 75231
Phone: 216.791.7500
Toll-free: 800.AHA.USA1
American Heart Association Related Sites
- Living with Heart Failure*—a website designed to provide information and support for heart failure patients and caregivers.
- BetterU Program*—a FREE 12-week online nutrition and fitness program that can makeover your heart. Each week will focus on a different area of your health and provide step-by-step guidance.
- HeartHub Video Library*—a great video resource covering conditions, treatments, and more.
- Heart360*—a convenient and secure location for you to track and manage your heart health. Record your health data with our online trackers, access additional information and resources on how to be heart healthy to reduce your risk of cardiovascular disease.
American Stroke Association
Affiliated with the American Heart Association, the American Stroke Association provides information and support to over 1,850 stroke groups and more than 150,000 stroke survivors, caregivers and healthcare professionals throughout the country.
American Stroke Association National Center
7272 Greenville Avenue
Dallas TX 75231
Toll-free: 888.4STROKE or 888.478.7653
CongenitalHeartDefects.com
CongenitalHeartDefects.com offers information and resources for people with Congenital Heart Defects (CHD), including definitions of medical terms, hospitals caring for people with CHDs, links to support groups, articles regarding CHDs, and resources for the CHD community.
Baby Hearts Press
3910 Sierra Blanca Blvd
Temple, TX 76502-1662
Phone: 254.778.4770
Toll-free: 888.222.4649
Fax: 254.778.4772
Congenital Heart Information Network
Congenital Heart Information Network (C.H.I.N.) is an international organization that provides reliable information, support services and resources to families of children with congenital heart defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them.
C. H. I. N.
101 N Washington Ave Suite 1A
Margate City NJ 08402-1195
Phone: 609.822.1572
Fax: 609.822.1574
Fibromuscular Dysplasia Society of America (FMDSA)
Fibromuscular Dysplasia Society of America (FMDSA) is an organization for the purpose of Fibromuscular Dysplasia (FMD) awareness, education, and research.
FMDSA
20325 Center Ridge Road Suite 620
Rocky River, Ohio 44116
Phone: 216.834.2410
Toll-free: 888.709.7089
Healthwise Connection
This free Cleveland Clinic hospitals' program entitles you to special discounts and services available exclusively to Healthwise Connection members. Our program is open to all people age 50 and older who are interested in preserving and protecting their health, while saving money and savoring new experiences.
Heart Support of America
Heart Support of America provides direct financial assistance to heart disease victims and their families that do not have the resources for the treatment and care they need.
Heart Support of America
2902 Tazewell Pike, Suite G
Knoxville, TN 37918
Hypertrophic Cardiomyopathy Association (HCMA)
The Hypertrophic Cardiomyopathy Association (HCMA) was established in 1996 as a support organization focused at providing information and support to those with HCM, their families and the medical community.
Hypertrophic Cardiomyopathy Association
328 Green Pond Rd.
PO Box 306
Hibernia, NJ 07842
Phone: 973.983.7429
Fax: 973.983.7870
Mended Hearts
Mended Hearts is a national organization dedicated to providing support and inspiring hope in heart disease patients and their families for more than 60 years. Mended Hearts of Greater Cleveland is a chapter of this national nonprofit organization. Mended Hearts helps people understand that there can be a rich, rewarding life after a heart event. They bring bring patients, families and caregivers together to form a network of caring individuals. Members listen, share their experiences and learn from healthcare professionals.
For dates of upcoming support group meetings and more information, visit MendedHearts138.org or email info@mendedhearts138.org.
For our national office, visit MendedHearts.org.
The Mended Hearts, Inc.
8150 N. Central Expressway, M2075
Dallas, Texas 75206
Information Line (Toll-free): 888.HEART99 (1.888.432.7899)
National Office: 214.296.9252
Fax: 214.295.9552
The Patient’s Guide To Heart Valve Surgery - Adam's Heart Valve Surgery Blog
Adam Pick, a double valve surgery patient blogs about heart valve replacement and heart valve repair surgery. His Heart Valve Journals section allows patients and family members interact with other valve surgery patients.
Phone: 888-725-4311
StopAfib.org
StopAfib.org is a patient-to-patient resource to help you control your atrial fibrillation so it doesn't rule your life. It's goal is also to build an atrial fibrillation community through communication, conversation, and collaboration at their StopAfib Discussion Forum and Atrial Fibrillation Blog.
StopAfib
P.O. Box 541
Greenwood, Texas 76246-0541
Sudden Arrhythmia Death Syndromes (SADS) Foundation
Sudden Arrhythmia Death Syndromes (SADS) is a nonprofit organization, established for the purpose of helping to prevent sudden and unexpected cardiac death in children and in young adults. The SADS Foundation is committed to supporting families and individuals with genetically mediated cardiac arrhythmias through education, research, and advocacy.
Sudden Arrhythmia Death Syndromes (SADS)
508 E South Temple Suite 20
Salt Lake City, UT 84102
Toll-free:800.STOP.SAD or 800.786.7723
TRIO: Transplant Recipient International Organization
Transplant Recipient International Organization (TRIO) is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.
Transplant Recipients International Organization, Inc.
2100 M Street, NW, #170-353
Washington, DC 20037-1233
Phone: 202.293.0980
Toll-free: 800.TRIO.386
Locally, TRIO meets the fourth Wednesday of every month at 6:30 p.m. at University Hospitals, Bolwell Hall on odd-numbered months, and at the Cleveland Clinic on even numbered months. Parking and refreshments provided. For more information, please call 216.473.8979.
Additional Resources
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The Miller Family Heart & Vascular Institute at Cleveland Clinic is not responsible for the content or the performance of these sites. These sites may contain online chats or posting boards that provide an opportunity for users with a common interest or health care issue to communicate and offer support. Statements are opinion only and are not considered medically accurate. When posting medical information about you, please note that it is not a private forum. All information you post will be read by others.
Use these sites at your own risk including any risks associated with destructive viruses. Please remember that medical information, in the absence of a visit with a health care professional, must be considered of an educational or supportive nature only. It should not be relied upon as a medical consultation and is not designed to replace a physician's independent judgment about the appropriateness or risks of a procedure for a given patient.
Reviewed: 03/12