What are common complications or side effects of Ehlers-Danlos syndrome?

The complications of some types of Ehlers-Danlos syndrome can be life-threatening. Some types, including vascular Ehlers-Danlos syndrome, can cause blood vessels to rupture (tear). When this happens, it can lead to dangerous internal bleeding and stroke.

People with these types of Ehlers-Danlos syndrome also have a higher risk of organ rupture. Most commonly, the intestines or a pregnant woman's uterus may tear.

The complications of other kinds of Ehlers-Danlos syndrome depend on the type. These complications can include:

  • Problems with the valves that push blood through the heart
  • Severe spine curvature
  • Thinning of corneas in the eyes
  • Bowed (curved) limbs
  • Defects of the teeth and gums

How can people best live with Ehlers-Danlos syndrome?

Doctors can help you manage symptoms with physical therapy and, if needed, pain management. Monitoring Ehlers-Danlos syndrome through regular doctor visits is the best way to ensure the condition does not stand in the way of enjoying a healthy life.

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