What is the outlook for people who have Stevens-Johnson syndrome?

If someone survives having SJS, future problems could include:

  • Skin: dryness, itching, change in color (pigmentation)
  • Eyes: chronic swelling and/or dryness, chronic irritation, difficulty seeing, sensitivity to light (photophobia)
  • Excessive sweating
  • Nail loss or deformity
  • Hair loss (alopecia)
  • Dryness of mucus membranes, which could cause problems urinating
  • Difficulties with the sense of taste

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