Are there resources for people with pulmonary alveolar proteinosis (PAP) and their families?

Yes. Among others, you can contact:

Last reviewed by a Cleveland Clinic medical professional on 06/06/2018.

References

  • Expert knowledge and experience of healthcare providers at Cleveland Clinic
  • Genetic and Rare Disease Information Center. Autoimmune Pulmonary Alveolar Proteinosis. Accessed 6/11/2018.
  • Borie R, Danel C, Debray MP, et al. Pulmonary alveolar proteinosis. Eur Respir Rev. 2011;20(120):98-107.
  • National Organization for Rare Disorders. Pulmonary Alveolar Proteinosis. Accessed 6/11/2018.
  • Alshati MH. Alveolar proteinosis: a slow drowning in mud. Cleve Clin J Med. 2014; 81(8):468-470. doi:10.3949/ccjm.81a.13085.
  • Kumar A, Abdelmalak B, Inoue Y, Culver DA. Pulmonary alveolar proteinosis in adults: pathophysiology and clinical approach. The Lancet Respiratory Medicine. January 2018. doi:10.1016/s2213-2600(18)30043-2.

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