What is the prognosis (outlook) for someone with Susac's syndrome?

Susac's syndrome may follow a different path for everyone. In some people, the syndrome disappears in a few months, even without treatment. In others, symptoms keep coming back even after long-term treatment.

Susac's syndrome usually lasts between six months and five years. Most patients seem to get better after about two to four years. If the symptoms during this period are mild or easily controlled with medications, there may be little or no lasting damage. Some people, however, have severe cases in which there is permanent harm, including dementia, loss of vision, and deafness. Susac's syndrome can also reappear after many years of remission.

Last reviewed by a Cleveland Clinic medical professional on 05/26/2017.


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