What should I do if I have the spinal muscular atrophy gene but do not have SMA?
If you have been diagnosed as a carrier of the SMA gene but are not affected by the condition, you should still seek the advice of a genetic counselor or your doctor. This is very important if you are considering having a child. He or she will be able to help you evaluate your risks and chances of having a child with spinal muscular atrophy. If you have already had a child with SMA, your counselor should be able to advise you of your options regarding future pregnancies.
925 Busse Road
Elk Grove Village, IL 60007
Muscular Dystrophy Association
National Office - 222 S. Riverside Plaza Suite 1500
Chicago, IL 60606
1321 Duke Street Suite 304
Alexandria, VA 22134
Spinal Muscular Atrophy Foundation
888 Seventh Avenue, Suite 400
New York, NY 10019
877.FUND.SMA (877.386.3762), 646.253.7100