Mitochondrial Disease Organizations

United Mitochondrial Disease Foundation (UMDF)
8085 Saltsburg Road Suite 201
Pittsburgh, PA 15239
Phone:412.793.8077
Phone: 888.317.8633 - Toll free
www.umdf.org

Organic Acidemia Association
Carol Barton, Executive Director
9040 Duluth Street
Golden Valley, MN 55427
Email: mkstagni@gmail.com
Phone: 763.559.1797 (Central Time)
Toll-free fax: 866.539.4060
www.oaanews.org

Fatty Oxidation Disorder Support Group
Deb Lee Gould, MED
Director, FOD Family Support Group
P. O. Box 54
Okemos, MI 48805
Phone: 517.381.1940 (EST 8am - 8pm)
www.fodsupport.org

Other National Organizations

The ARC
2421 Community College Ave.
William Patrick Day Early Childhood Center
Cleveland, OH 44115
Phone: (216) 622.0755
Email: arcgc@thearcofgreatercleveland.org
1825 K Street, NW, Suite 1200, Washington, DC 20006
(800) 433-5255
www.thearc.org

March of Dimes Birth Defect Foundation Resource Center
1275 Mamaroneck Ave.
White Plains, NY 10605
Phone:914.997.4488
www.modimes.org

National Health Information Center (NHIC)
Office of the Assistant Secretary for Health, Office of the Secretary,
U.S. Department of Health and Human Services
1101 Wootton Parkway, Suite LL100
Rockville, MD 20852
Phone 301 496 0176
Fax: (240) 453-8282
Email: odphpinfo@hhs.gov

National Institutes of Health (NIH)
9000 Rockside Pike
Bethesda, MD 20892
Phone:301.496.4000
http://www.nih.gov/

National Organization for Rare Diseases (NORD)
P.O. Box 1968
55 Kenosia Avenue
Danbury, CT 06810
Phone: 203.744.0100
Fax: 203.798.2291
www.rarediseases.org

The Oley Foundation
For home nutrition support
43 New Scotland Ave., MC-28
Albany Medical Center
Albany, NY 12208-3478
800.776.6539 — toll free in US and Canada
518.262.5079 — calls from Europe and elsewhere
518.262.5528 — fax
www.oley.org

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This information is provided by the Cleveland Clinic and is not intended to replace the medical advice of your doctor or health care provider. Please consult your health care provider for advice about a specific medical condition. This document was last reviewed on: 12/2/2016...#8663