Books for Kids

Dotty the Dalmatian has Epilepsy

From the Dr. Wellbrook Collection; Tim Peters & Company. 1994. ISBN-10: 1879874350

Lee, the Rabbit with Epilepsy (intended for ages 3-6)

Deborah M. Moss; Rockville, MD; Woodbine House, 1989. ISBN-10: 0933149328

My Friend Matty: A Story About Living with Epilepsy

Debra and Richard Siravo; The Drummond Publishing Group, 2005. ISBN-10: 159763011X

mattyfund.org/resources/my-friend-matty-book

Taking Seizure Disorders to School: A Story About Epilepsy

Kim Gosslin; Jay Jo Books, 2001. ISBN-10: 1891383167

Books for Parents

The Brainstorms Family: Epilepsy on Our Terms

Steven C. Schacter, MD, Georgia D. Montouris, MD, John M. Pellock, MD; Lippincott Williams & Wilkins, 1996. ISBN-10: 0397518390

The Ketogenic Diet: A Treatment for Children and Others with Epilepsy, Fourth Edition

John Freeman, MD, Eric Kossoff, MD, Millicent Kelley, RD, & Jennifer Freeman; New York: Demos Medical Publishing, 2006. ISBN 10: 1932603182

Seizures and Epilepsy in Childhood: A Guide for Parents

John M. Freeman, MD, Eileen P.G. Vining, MD, and Diana J. Pilas; The John Hopkins University Press, 2002. ISBN-10: 0801870518

Your Child and Epilepsy: A Guide to Living Well

Robert J. Gumnit, MD; New York: Demos Medical Publishing, 1995. ISBN-10: 0939957760

Videos/DVDs

Seizures in School: Understanding and Assisting Students with Epilepsy, DVD

Available through the Epilepsy Foundation. www.epilepsy.com. 1.800.332.1000

Useful Websites and Organizations

Charlie Foundation

The Charlie Foundation to Help Cure Pediatric Epilepsy was founded in 1994 after Charlie Abrahams was cured of his epilepsy by the ketogenic diet at Johns Hopkins Hospital. The foundation has been instrumental in providing support to families looking for resources on the ketogenic diet.

Matthew’s friends

Matthew’s friends is a website that provides families resources under various sections: educational materials about various forms of diet; nuts and bolts of everyday aspects of the ketogenic diet; a family forum to discuss concerns and elicit responses from other ketogenic diet families.

++Ketogenic Diet Support Group++
This is an online support group with members from all over the world. This is a forum where patients/families on the ketogenic diet exchange their ideas and attempt to offer solutions to day-to-day problems in continuing ketogenic diet. (The group moderator has to accept your request to join the group.)

Sources for this Resource List

Epilepsy Foundation: www.epilepsyfoundation.org

Center for Parent Information and Resources: www.parentcenterhub.org

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