What can I expect if I’ve been diagnosed with progressive supranuclear palsy (PSP)?

Your symptoms will slowly worsen with time. PSP can’t be reversed, and it can’t be cured. However, the sooner the diagnosis is made and a treatment plan is put into place, the better your quality of life will be.

Most patients with PSP become wheelchair-bound. They may need part or full time care as early as three to four years into the disease. This depends on the person.

Unfortunately, in the long-term, complications of the disease can be fatal. PSP won’t directly kill you, but it is deadly. Common complications include choking, pneumonia, fractures and head injuries (because of the falls).

How long can someone live with progressive supranuclear palsy (PSP)?

People with PSP typically pass away from complications within six to ten years – but it depends on the person. Walking can become difficult, if not impossible, after five or six years.

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