Organizations

March of Dimes

1275 Mamaroneck Avenue

White Plains, NY 10605

askus@marchofdimes.com

www.marchofdimes.com

Tel: 914-997-4488; 888-MODIMES (663-4637)

Fax: 914-428-8203

National Organization for Rare Disorders (NORD)

55 Kenosia Avenue

Danbury, CT 06810

orphan@rarediseases.org

www.rarediseases.org

Tel: 203-744-0100; Voice Mail: 800-999-NORD (6673)

Fax: 203-798-2291

National Eye Institute (NEI)

National Institutes of Health, DHHS

31 Center Drive, Rm. 6A32 MSC 2510

Bethesda, MD 20892-2510

2020@nei.nih.gov

www.nei.nih.gov

Tel: 301-496-5248

Sturge-Weber Foundation

P.O. Box 418

Mt. Freedom, NJ 07970

SWF@sturge-weber.org

www.sturge-weber.org

Tel: 973-895-4445; 800-627-5482

Fax: 973-895-4846

Vascular Birthmarks Foundation

P.O. Box 106

Latham, NY 12110

hvbf@aol.com

birthmark.org

Tel: 877-VBF-4646 (823-4646)

Source: *National Institutes of Health; National Institute of Neurological Disorders and Stroke*

Last reviewed by a Cleveland Clinic medical professional on 06/30/2015.

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