Organizations

National Dysautonomia Research Foundation

P.O. Box 301

Red Wing, MN 55066-0301

ndrf@ndrf.org

www.ndrf.org

Tel: 651-327-0367 Fax: 651-267-0524

National Organization for Rare Disorders (NORD)

55 Kenosia Avenue

Danbury, CT 06810

orphan@rarediseases.org

www.rarediseases.org

Tel: 203-744-0100; Voice Mail: 800-999-NORD (6673)

Fax: 203-798-2291

Dysautonomia Foundation

315 W. 39th Street

Suite 701

New York, NY 10018

info@familialdysautonomia.org

www.familialdysautonomia.org

Tel: 212-279-1066

Fax: 212-279-2066

Familial Dysautonomia Hope Foundation, Inc. (FD Hope)

121 South Estes Drive

Suite 205-D

Chapel Hill, NC 27514-2868

info@fdhope.org

www.fdhope.org

Tel: 919-969-1414

The Multiple System Atrophy Coalition

9935-D Rea Road

Charlotte, NC 28227

vjames@msacoalition.org

www.multiple-system-atrophy.org

Tel: 866-737-5999

Dysautonomia Youth Network of America, Inc.

1301 Greengate Court

Waldorf, MD 20601

info@dynainc.org

www.dynainc.org

Tel: 301-705-6995

Fax: 301-638-DYNA

*Source: National Institutes of Health; National Institute of Neurological Disorders and Stroke NINDS*

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