National Organization for Rare Disorders (NORD)

55 Kenosia Avenue

Danbury, CT 06810

Tel: 203-744-0100;

Voice Mail: 800-999-NORD (6673)

Fax: 203-798-2291

National Digestive Diseases Information Clearinghouse (NDDIC)

2 Information Way

Bethesda, MD 20892-3570

Tel: 301-654-3810; 800-891-5389

Source: National Institutes of Health; National Institute of Neurological Disorders and Stroke

Last reviewed by a Cleveland Clinic medical professional on 02/03/2016.

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