Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer.
Organizations Supporting this Disease
The Mastocytosis Society
P.O. Box 416
Sterling, MA 01564
Source: National Institutes of Health; National Institute of Allergy and Infectious Diseases