Learn about the intestinal transplant process
We know that learning about the intestinal transplant process and how to care for your child’s health may be overwhelming at first. But remember, you can learn a little each day. There will be times when you feel both excited and nervous about transplant: these are normal reactions. Being prepared in advance by learning and understanding what to expect will help ease your fear of the unknown. We have designed an extensive teaching program to help you learn about the intestinal transplant process, your child’s health needs, and medical care before and after your transplant. Always discuss your questions and expectations about intestinal transplant with your health care providers.
Be an active partner in your health care
We believe it is important for you, the parents, as well as your child to be an active participants in the transplant process and work with the transplant team to promote a positive outcome. You will need to assume a lot of responsibility by doing whatever is necessary to build and maintain optimal growth and nutrition in preparation for intestinal transplant surgery. Your health care providers and dieticians are available to work with you to obtain this goal. Parents will learn how to recognize and report any change in the child’s condition. No one knows one's child better than the parents.