Expand Content

International Fibromuscular Dysplasia Research Network Symposium

FMD

InterContinental Hotel and Conference Center

9801 Carnegie Avenue | Cleveland, OH 44106

May 15, 2014 | 10:30 a.m. - 5:15 p.m.
May 16, 2014 | 8 a.m. - 5:30pm

*Includes meals and conference materials



Meeting Description and Purpose

Focal FMD

Focal FMD

Multifocal FMD

Multifocal FMD

Fibromuscular dysplasia is an uncommon non-atherosclerotic arterial disorder that is associated with major vascular morbidity, including hypertension, stroke, arterial aneurysm and arterial dissection. More than 90% of patients with FMD are female and the average age at the time of diagnosis is 52 years. Though initially described in 1938, the underlying pathophysiology and genetics of this disorder remains unknown and the prevalence of FMD in the general (female) population is uncertain. The accuracy and cost effectiveness of various imaging modalities to detect and assess severity of FMD remains largely unknown. There have been no randomized clinical trials which have investigated the relative benefit of medical versus interventional therapy for treatment of arterial occlusive or aneurysmal lesions in FMD.

This meeting will gather key researchers and clinical thought leaders in the field of FMD for a state-of-the-art review of the existing knowledge base and current research activities related to FMD in the United States and abroad. A large proportion of the meeting will be focused on the creation of an FMD research network, comprised of four focused working groups on various aspects of FMD research (epidemiology, genetics, research registries, and imaging and clinical therapeutics).

The goal of this meeting is to establish a multi-disciplinary collaborative FMD research network and set an agenda of research priorities with subsequent funding and execution plans to significantly advance knowledge of the understanding of FMD while improving evidence-based care for FMD patients. Small group interaction among working group members with specialized expertise in FMD clinical care and/or the specific research disciplines will discuss research priorities and propose a roadmap of research initiatives moving forward. The genetics working group will meet to determine best use of existing biorepositories of stored blood samples. There will be substantial effort to publicize the discussions of the conference and maximize future research collaborations.

The proposed audience for this conference includes vascular specialists and other clinicians who care for patients with FMD (e.g., neurologists, nephrologists).


Reviewed: 07/14

Talk to a Nurse: Mon. - Fri., 8:30 a.m. - 4 p.m. (ET)

Call a Heart & Vascular Nurse locally 216.445.9288 or toll-free 866.289.6911.

Schedule an Appointment

Toll-free 800.659.7822

This information is provided by Cleveland Clinic and is not intended to replace the medical advice of your doctor or health care provider. Please consult your health care provider for advice about a specific medical condition.

© Copyright 2015 Cleveland Clinic. All rights reserved.

HealthHub from Cleveland Clinic

Read the Latest from Our Experts About » cctopics » Heart & Vascular Health
Obese Children Have Greater Risk for Adult Heart Disease
3/27/15 7:00 a.m.
For many people, obesity starts developing in early childhood, when good dietary and exercise habits are neglected. It’s important for parents to know there’s l...
by Children's Health Team
Is Heart Disease In Your Genes?
3/26/15 8:07 a.m.
Do you wonder why some smokers develop heart disease, but others don’t? Or how someone who thrives on burgers a...
Heart Patients: 3 Common Medications You May Need to Avoid
3/25/15 8:47 a.m.
If you’re being treated for a heart condition, medicine cabinet staples such as aspirin and ibuprofen may not b...
Should You Take Aspirin If You Are on Blood Thinners? (Video)
3/23/15 8:09 a.m.
Aspirin. It’s one of the oldest drugs in medicine. As it continues to be valuable, we also keep learning ...
Technique Beefs Up Your Heart’s Pumping Power
3/19/15 8:42 a.m.
Our hearts rely on perfectly timed contractions to squeeze and refill an average of 100,000 times a day. When t...