Congenital heart disease is the most common birth defect in the United States, occurring in one of every 110 births. Due to medical breakthroughs and progress in treatment, patients with CHD are reaching adulthood and living longer. Currently, there are more than one million adults in the United States living with this disease, and this number continues to rise by approximately 5 percent each year. At least 10 percent of all congenital heart defects are first detected in adulthood.
Adolescents and adults with CHD face unique challenges; the most common problem among adults is arrhythmia. In addition, research has shown that the risk of sudden cardiac death for patients surviving operation is 25 to 100 times greater in an adult with CHD compared with a typical adult. 1 Therefore, an aggressive approach to evaluation and treatment is necessary. This requires a coordinated team approach that includes an initial evaluation, explanation of therapeutic options, innovative surgical and transcatheter therapies and consultative follow-up.
The 2008 American College of Cardiology/American Heart Association Task Force on Practice Guidelines recommend that all patients with adult congenital heart disease (ACHD) have a primary physician and that they be evaluated by a cardiologist with advanced training and expertise in ACHD. Frequency of follow-up is based on the patient's condition. In addition, patients who require interventional and/or surgical cardiovascular procedures are best served at centers with a specialized multidisciplinary adult congenital heart center. 2
Cleveland Clinic's Adult Congenital Heart Disease Center, directed by David Majdalany, MD, and Gosta Pettersson, MD, uses a multidisciplinary team approach to deal with issues specific to adolescent and adult patients with congenital heart disease (CHD). The team includes surgeons and cardiologists who specialize in both pediatric and adult CHD, anesthesiologists, nurse practitioners, internists, geneticists, dentists, obstetricians and gynecologists, psychiatrists, radiologists, cardiac rehabilitation, and physical and occupational therapists. Cleveland Clinic's Adult Congenital Heart Disease Center combines cutting-edge technology with compassion and a family-centered approach to congenital heart care.
- J Am Coll Cardiol, 1988; 32:245-251; Online 1998
- Circulation. 2008;118:e714–e833; online November 7, 2008
- Adult Congenital Heart Association
- The International Society for Adult Congenital Heart Disease
- The Canadian Adult Congenital Network
- Congenital Heart Information Network
- American Heart Association ACHD information
The Adult Congenital Heart Disease Center brings together clinicians that specialize in adult congenital heart disease. The team includes physicians and nurses from Cardiovascular Medicine, Pediatric Cardiology, Pediatric and Congenital Heart Surgery, Cardiothoracic Surgery, Diagnostic Radiology, Pulmonary, Allergy and Critical Care Medicine, and the Transplantation Center. These individuals possess expertise in either genetic and diagnostic testing, medical management or surgical and interventional procedures for patients with all types of congenital heart conditions. Some are listed below:
Why choose Cleveland Clinic for your care?
Our outcomes speak for themselves. Please review our facts and figures and if you have any questions don’t hesitate to ask.
Cleveland Clinic's Adult Congenital Heart Disease Center is directed by David Majdalany, MD and Gosta Pettersson, MD, PhD and uses a multidisciplinary team approach to deal with issues specific to adolescent and adult patients with congenital heart disease (CHD). The team includes surgeons and cardiologists who specialize in both pediatric and adult CHD, anesthesiologists, nurse practitioners, internists, geneticists, dentists, obstetricians and gynecologists, psychiatrists, radiologists, cardiac rehabilitation, and physical and occupational therapists. Cleveland Clinic's Adult Congenital Heart Disease Center combines cutting-edge technology with compassion and a family-centered approach to congenital heart care.
Our cardiologists and surgeons are world-renowned leaders in the treatment of CHD. Each year, they see about 1,300 patients and perform more than 350 surgeries with outcomes among the best in the nation.
Our team of pediatric and adult cardiologists, electrophysiologists, Cardiothoracic surgeons and intensive-care experts specialize in:
- A full range of imaging techniques and diagnostic studies designed to diagnose congenital heart defects
- Interventional catheter based procedures to treat defects of the heart and electrophysiology abnormalities
- Surgical procedures including congenital heart surgery and cardiac transplantation to treat complex congenital conditions
Our Medical Team
- Gosta Pettersson, MD, PhD - Vice Chairman,
Department of Thoracic and Cardiovascular Surgery;
Surgical Director, Lung Transplantation
- David Majdalany, MD - Director,
Adult Congenital Heart Disease Services;
Staff Cardiologist, Section of Clinical Cardiology
Bruce Lindsay, MD – Cardiovascular Medicine, Section of Electrophysiology and Pacing
- Mina Chung, MD – Cardiovascular Medicine, Section of Electrophysiology and Pacing
- Patrick Tchou, MD - Cardiovascular Medicine, Section of Electrophysiology and Pacing
- Narij Varma, MD, PhD - Cardiovascular Medicine, Section of Electrophysiology and Pacing
- Mohamed Kanj, MD - Cardiovascular Medicine, Section of Electrophysiology and Pacing
- Bruce Wilkoff, MD - Cardiovascular Medicine, Section of Electrophysiology and Pacing
Advanced Imaging Team (CT and MRI)
- Gerard Boyle, MD - Pediatric Cardiology, Transplantation Center
- Marie Budev, DO - Pulmonary, Allergy and Critical Care Medicine, Transplantation Center
- Mazen Hanna, MD - Cardiovascular Medicine, Transplantation Center
- Randy Starling, MD, MPH - Cardiovascular Medicine, Transplantation Center
- Nicholas Smedira, MD - Thoracic and Cardiovascular Surgery, Transplantation Center
- Nader Moazami, MD - Thoracic and Cardiovascular Surgery
- Kenneth McCurry, MD - Thoracic and Cardiovascular Surgery
- Gosta Pettersson, MD, PhD - Thoracic and Cardiovascular Surgery
What to Expect
Whether you are coming from around the corner or around the world, you want to know what to expect before, during and after your visit with us. If you have any questions while reviewing this information, please contact us. We are happy to answer any questions you may have.
Before Your Appointment
If you are scheduled at least one week away, you will be asked to send in your records, including medical history, test results and films (such as echocardiogram, ultrasound, chest x-ray, MRI or CT as applicable). All information should be sent in the same package (clearly marked with your name and address) via Airborne Express, Federal Express, or certified U.S. mail (make sure you have a tracking number) to the physician you have scheduled the appointment with. The address to mail your records is:
Adult Congenital Heart Disease Center
9500 Euclid Avenue – Desk J2 - 4
Cleveland, Ohio 44195
If you are scheduled less than one week out, please bring your records to your appointment.
Traveling to Cleveland Clinic
When you make your appointment, we would like to make traveling to Cleveland Clinic as easy as possible. Information on travel to the Miller Family Heart and Vascular Institute.
During Your Appointment
A nurse or nurse practitioner will contact you prior to your arrival at Cleveland Clinic to make sure your visit is fully coordinated.
After you check in at J2 - 4, you will first be seen by a specialty trained fellow, medical resident, medical student, nurse practitioner or physician's assistant, who will review your information and begin the documentation process.
Additional testing may be required to look at your cardiac anatomy and function of your heart and other organs.
You will then meet with your ACHD physician who will review your records and take a medical history, perform a physical exam, and advise on consultations with other specialists within the Center as needed. If you need to meet with one of the multidisciplinary specialists, you will see the specialist within 1 to 2 days. Your ACHD physician will provide you with a diagnosis and plan of care.
Specialists from the Center for Personalized Genetic Health are also available to evaluate family members who are at risk for genetic or hereditary conditions.
How long will you need to stay at Cleveland Clinic?
To complete all testing, you will need to stay in the Cleveland area for 1 to 3 days.
After Your Visit
Most follow-up visits will be done in 6 months to 1 year or as needed. There is an opportunity for telephone follow-up as well.
Locally 216.445.7430 or toll-free 800.223.2273, ext. 57430
When you make your appointment, ask the administrative assistant for the name of your physician and desk number. You will be told to go to Desk J2 - 4 or Desk M41, 9500 Euclid Avenue, Cleveland, OH.
Use our secure online form to submit an appointment request 24/7. We will receive it and follow-up with you as soon as possible.
Mon. - Fri., 8 a.m. - 5 p.m. (ET):
locally 216.445.7430 or toll-free 800.223.2273, ext. 57430
At all other times call Patient Access Services locally 216.444.8302 or toll-free 800.553.5056.
Cleveland Clinic Heart and Vascular Institute physicians, surgeons, and researchers continue to research into new treatments and therapies with the goal of improving patient care and outcomes into the future.