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ALEX 1Z11   |   11-245
Paroxysmal Hemoglobinuria Registry

Disease(s)
PNH
Hospital(s)
Main Campus
Phase(s)
N/A
Stage(s)
N/A
Type(s)
Therapeutic
Drug(s)
Soliris

Contact Information
Cancer Answer Line

866.223.8100

8:00 am - 4:30 pm, Monday - Friday


Description
Primary
  1. The PNH registry will collect data to evaluate safety data specific to the use of Soliris
  2. The PNH registry will collect data to characterize the progression of PNH as well as clinical outcomes, mortality and morbidity in Soliris and non-Soliris treated patients
Secondary
  1. Raising PNH awareness in the medical community and subject/potential subject population

Inclusion Criteria
  1. PNH patients of any age, including minors, that are receiving Soliris or
  2. PNH patients of any age, including minors, that are not on Soliris treatment
  3. NOTE: PNH patients include all patients with a diagnosis of PNH or a detected PNH clone as defined in section 7.1

Exclusion Criteria
Exclusion Criteria Not Available

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