Many organizations are available to provide information and support while you wait for your lung transplant. Here are some organizations you may want to contact:
Lung Transplant Resources
Second Wind Lung Transplant Association, Inc.
300 South Duncan Avenue, Suite 227
Clearwater, FL 33755-6457
888.855.9463 (toll free) or 727.442.0892
General Transplant Resources
American Council on Transplantation
P.O. Box 1709
Alexandria, VA 22313
800.ACT.GIVE (800.228.4483)
National Transplant Assistance Fund
3475 West Chester Pike, Suite 230
Newtown Square, PA 19073
800.642.8399 (toll free) or 610.353.1616
Fax: 610.353.1616
Email: NTAF@transplantfund.org
CenterSpan
A collaborative project of the American Society of Transplant Physicians and the American Society of Transplant Surgeons
Features Transplant News Network, an on-line broadcasting service that publishes monthly news reports on recent developments in transplant medicine
Children's Organ Transplant Association, Inc.
2501 COTA Drive
Bloomington, IN 47403
800.366.2682
Cleveland Clinic Foundation
Division of Organ Transplantation
Health Resources and Services Administration
5600 Fishers Lane, Room 11A-22
Rockville, MD 20857
Organ Transplant Fund, Inc.
800.489.3863 or 901.684.1697
1102 Brookfield, Suite 202
Memphis, TN 38119
Partnership for Organ Donation
Two Oliver Street
Boston, MA 02109
617.482.5746
email: info@organdonation.org
Transplant Foundation
8002 Discovery Drive, Suite 310
Richmond, VA 23229
804.285.5115
Email: otfnatl@aol.com
Transplant Recipients International Organization (TRIO)
Cleveland Chapter:
P.O. Box 210053
Cleveland, OH 44121
216.473.8979
International Headquarters:
2117 L Street NW, Suite 353
Washington, DC 20037
800.TRIO.386
Email: triointl@aol.com
TransWeb
Information about transplantation and donation
United Network for Organ Sharing (UNOS)
800.24.DONOR (800.243.6667)
Hotline provides general information on transplants, current statistics and listings of transplant centers
Other Resources
National Heart, Lung, and Blood Institute
Information Center
P.O. Box 30105
Bethesda, MD 20824-0105
301.251.2222
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This information is provided by the Cleveland Clinic and is not intended to replace the medical advice of your doctor or health care provider. Please consult your health care provider for advice about a specific medical condition. This document was last reviewed on: 2/7/2003
