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866.588.2264

Toll-Free: 866.588.2264

 

About Us

Young Onset Parkinson's Disease Support Group

Why do we have a Young Onset Parkinson's Disease support group?

  • Connecting with other young people who are going through similar experiences can make you feel less alone. We believe that support groups provide the best forum for the individual and their caregiver to quickly gather information and to grow in the knowledge and understanding of their disease. In support groups you find wonderful people with compassion, courage, humor, and a desire to help each other.
  • To recognize and come to terms with your condition at a young age allows you to accept what has happened to you and you can take care of yourself, exercising, taking part in the daily activities you have always enjoyed, consulting a movement disorder specialist and participating with him or her in managing your disease. In other words, take charge of your life as much as possible.
  • Living with PD does not mean you should limit what you do. You should live life to the fullest, just as you would without PD. You do not need to advertise you have PD but, at the same time, don’t hide the fact. Freely admit you have the disease, it is nothing to be ashamed of. By being in a support group, you can tell your story which may help somebody else, or you might hear someone else’s story and gain some help from it. Through this give and take you gain strength and courage and learn new ways to cope. No matter how long you have had PD, attending support group meetings should be beneficial for you. The earlier you start, the greater the benefit.
  • We offer education about resources such as healthcare, insurance information, budgeting & planning, estate and special needs planning, support services for family & friends and veterans, case management services, mental health and employment and disability information.

How can a support group serve you?

  • Learn about Parkinson’s disease treatment, news and research
  • Connect with other young people who understand the challenges first hand
  • Generate and share ideas for better self-care
  • Inspire one another to be strong and improve overall quality of life
  • Utilize your own experiences to help others