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Diseases & Conditions

Mitochondrial Disease Resources

(Also Called 'Mitochondrial Disease Resources - Resources')

Mitochondrial Disease Organizations

United Mitochondrial Disease Foundation (UMDF)
8085 Saltsburg Road Suite 201
Pittsburgh, PA 15239
Phone:412.793.8077
Phone: 888.317.8633 - Toll free
www.umdf.org

Organic Acidemia Association
Carol Barton, Executive Director
P. O. Box 1008
Pinole, CA 94564
510.672.2476
www.oaanews.org

Fatty Oxidation Disorder Support Group
Deb Lee Gould, MED
Director, FOD Family Support Group
P. O. Box 54
Okemos, MI 48805
Phone: 517.381.1940 (EST 8am - 8pm)

Other National Organizations

The ARC
1660 L Street NW, Suite 301
Washington, DC 20036
Phone: 800.435.5255
www.thearc.org

March of Dimes Birth Defect Foundation Resource Center
1275 Mamaroneck Ave.
White Plains, NY 10605
Phone:914.997.4488
www.modimes.org

National Health Information Center (NHIC)
8600Rockville Pike
Building 38A, Room 45-410
Bethesda, MD 20892
301.496.0176

National Institutes of Health (NIH)
9000 Rockside Pike
Bethesda, MD 20892
Phone:301.496.4000

National Organization for Rare Diseases (NORD)
P.O. Box 1968
55 Kenosia Avenue
Danbury, CT 06813
Phone:800.999.NORD(6673)
www.rarediseases.org

The Oley Foundation
For home nutrition support
214 Hun Memorial
Albany Medical Center, A-23
Albany, NY 12208
Phone:800.776.OLEY (6539)
www.oley.org

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This information is provided by the Cleveland Clinic and is not intended to replace the medical advice of your doctor or health care provider. Please consult your health care provider for advice about a specific medical condition. This document was last reviewed on: 1/26/2011...#8663