Weekly Meetings
These meetings occur every week in the Children’s Hospital, at the Cleveland Clinic’s main campus, and are accommodating the parents of our hospitalized patients. Through these meetings we provide every opportunity for interactions, exchange of ideas, as well as listen as they express each others' concerns and draw comfort as their child goes through various evaluations, procedures or epilepsy surgery. For several years, scores of families have benefited from the weekly meetings of this support group.
In a collective effort, our team of Volunteer Ambassadors, Cleveland Clinic Child Life Support, Cleveland Clinic Social Work, and members of the medical and neurosurgical staff make themselves available for the parents. These meetings have been universally well-received, as is evident by glowing feedback from families who have attended, and the keen interest expressed by a number of them to become volunteer ambassadors themselves.
Quarterly Symposia
Other activities have expanded beyond the weekly meetings to quarterly symposia; these avenues ease networking between families within, as well as outside the Greater Cleveland Area. Invited speakers offer insight and information on various topics relevant to families of children with epilepsy. Each symposium concludes with a question and answer session, an opportunity for stimulating discussions and exchange of ideas among attendees. Each symposium concludes with a question and answer session, an opportunity for stimulating discussions and exchange of ideas among attendees.
View additional information about Quarterly Symposia.
Biennial Reunion: "Epilepsy Surgery – The Journey Beyond"
Adding a different dimension to complement its role, PESG is pleased to present a biennial venue for pediatric post epilepsy surgery patients. The essential role of these family reunions is to offer a platform to interact with others with whom they share a common thread: epilepsy surgery. Invited speakers offer valuable information pertaining to life after surgery. Alongside nurses and physicians who had been a vital part of their journey, these families celebrate life, hope, strength and determination.
