Contact Information
Central Nervous System Atypical Teratoid/Rhabdoid Tumor (AT/RT) is a rare, very aggressive tumor seen in very young children, and quite rarely, in older children and young adults. Due to the rarity and rapidly growing nature of this pediatric brain tumor - and the historical difficulty in making a definitive diagnosis - there is no good evidence base upon which to design therapy. The AT/RT Registry, under the direction of Dr. Tanya Tekautz, was created to provide a voluntary, free, confidential, central database of information and outcomes on Central Nervous System Atypical Teratoid/Rhabdoid pediatric brain tumors; to provide information necessary for the optimal management of Atypical Teratoid/Rhabdoid tumors; and to provided physicians, patients and parents with information about the disease.
Treating physicians and parents alike can access Institutional Review Board material and the AT/RT Registry Information here. Questions can be sent via email to the registry coordinator . We will do everything we can to make sure you have the information you need. Parents of children enrolled on the registry have uniformly expressed gratitude that this registry is being maintained, and they honor their children in this way. It is with great respect and gratitude to these parents, and their children, that we continue this work.
