2010
International HapMap 3 Consortium, Altshuler DM, Gibbs RA, Peltonen L, Altshuler DM, Gibbs RA, Peltonen L, Dermitzakis E, Schaffner SF, Yu F, Peltonen L, Dermitzakis E, Bonnen PE, Altshuler DM, Gibbs RA, de Bakker PI, Deloukas P, Gabriel SB, Gwilliam R, Hunt S, Inouye M, Jia X, Palotie A, Parkin M, Whittaker P, Yu F, Chang K, Hawes A, Lewis LR, Ren Y, Wheeler D, Gibbs RA, Muzny DM, Barnes C, Darvishi K, Hurles M, Korn JM, Kristiansson K, Lee C, McCarrol SA, Nemesh J, Dermitzakis E, Keinan A, Montgomery SB, Pollack S, Price AL, Soranzo N, Bonnen PE, Gibbs RA, Gonzaga-Jauregui C, Keinan A, Price AL, Yu F, Anttila V, Brodeur W, Daly MJ, Leslie S, McVean G, Moutsianas L, Nguyen H, Schaffner SF, Zhang Q, Ghori MJ, McGinnis R, McLaren W, Pollack S, Price AL, Schaffner SF, Takeuchi F, Grossman SR, Shlyakhter I, Hostetter EB, Sabeti PC, Adebamowo CA, Foster MW, Gordon DR, Licinio J, Manca MC, Marshall PA, Matsuda I, Ngare D, Wang VO, Reddy D, Rotimi CN, Royal CD, Sharp RR, Zeng C, Brooks LD, McEwen JE. Integrating common and rare genetic variation in diverse human populations. Nature. 2010 Sep 2;467(7311):52-8. PMID: 20811451.
Blake V. Mass African Migration into Europe: Human Rights and State Obligations. Hamline University Hamline Journal of Public Law (Fall/Winter 2010).
Dilts DM, Cheng SK, Crites JS, Sandler AB, Doroshow JH (NCI). Phase III Clinical Trial Development: A Process of Chutes and Ladders,” Clinical Cancer Research, 2010 November 15: 16(22): 5381-5389.
Eng C, Sharp RR. Bioethical and Clinical Dilemmas of Direct-To-Consumer Personal Genomic Testing: The Problem of Misattributed Equivalence. Science Translational Medicine 2 (2010).
Fabsitz, RR, McGuire A, Sharp RR, Pandey M, Beskow LM, Biesecker LG, Bookman E, Burke W, Burchard EG, Church G, Clayton EW, Eckfeldt JH, Fernandez CV, Fisher R, Fullerton SM, Gabriel S, Gachupin F, James C, Jarvik GP. Ethical and practical guidelines for reporting genetic research results to study participants: Updated guidelines from an NHLBI working group. CircCardiovasc Genet. 2010 Dec 1;3(6):574-80. PMID: 21156933.
Frader J, Kodish E, Lantos, J. Symbolic resuscitation, medical futility, and parental rights. Pediatrics 2010, 126:769-72.
Goldenberg AJ, Hull SC, Wilfond BS, Sharp RR. Patient perspectives on group benefits and harms in genetic research. Public Health Genomics, online publication 10/08/2010. DOI: 10.1159/000317497) PMID: 20938159.
Hazen RA, Eder M, Drotar D, Zyzanski S, Reynolds AE, Reynolds CP, Kodish E, Noll RB. Multi-site Intervention Study to Improve Consent Research Team. A feasibility trial of a video intervention to improve informed consent for parents of children with leukemia. Pediatr Blood Cancer. 2010 Jul 15;55(1): 113-8.
Joffe S, Kodish E. Protecting the rights and interests of pediatric stem cell donors. Pediatric Blood and Cancer 2011; 56:517-19.
Kohn M. Jumping into our field’s third stream: bioethics, humanities, and the creative arts. Atrium: The Report of the Northwestern Medical Humanities & Bioethics Program. 2010;Summer:13-15.
Landy DC, Sharp RR. Examining the potential for exploitation by local intermediaries. Am J Bioeth. 2010 Mar;10(3):12-3.
Mehlman M, Berg J, Juengst E, Kodish E. Ethical and Legal Issues in Enhancement Research on Human Subjects. Cambridge Quarterly of Healthcare Ethics 2011; 20:30-45.
Paradis C, Phelan MP, Brinich M. A pilot study to examine research subjects’ perception of participating in research in the emergency department. J Med Ethics. 2010 Oct:36(10):580-8.
Paradis C, Siemionow M, Papay F, Lohman R, Kodish E, et al. Ethical considerations in the first American face transplant. Plastic and Reconstructive Surgery, 2010; 126:896-901.
Sharp RR, Landy DC. The financing of clinical genetics research by disease-advocacy organizations: A review of funding disclosures in biomedical journals. Am J Med Gen 2010 Dec;152A(12):3051-6. PMID: 21077206.
Sharp RR, McGowan ML, Verma JA, Landy DC, McAdoo, S, Carson SA, Simpson JL, McCullough LB. Moral attitudes and beliefs among couples pursuing PGD for sex selection. Reproductive BioMedicine Online 2010 Dec; 21(7): 838-47. EPub2010 Sep. 26. PMID: 21051290.
Silvers JB, Marinova D, Mercer MB, Connors A, Cuttler L. A national study of physician recommendations to initiate and discontinue growth hormone for short stature. Pediatrics. 2010 Sep;126(3):468-476.
Smith ML, Sharp RR, Weise K, Kodish E. Toward competency-based certification of clinical ethics consultants: a four-step process. Journal of Clinical Ethics 21:1 (Spring 2010): 14-22. PMID: 20465070.
Yap TY, Yamokoski A, Hizlan S, Zyzanski S, Angiolillo A, Rheingold S, Baker J, Kodish E. Informed Consent for Pediatric Phase I Cancer Trials: Physicians’ Perspectives. Cancer 2010; 116:3244-50.
Lead Committee Authorship: American College of Obstetricians and Gynecologists Committee on Ethics. Committee Opinion No. 466: Ethical considerations for performing gynecologic surgery in low-resource settings abroad. Obstetrics and Gynecology, 2010 Sept; 116(3):793-9.
Weise KL. Do-Not-Attempt-Resuscitation Orders in Public Schools http://virtualmentor.ama-assn.org/2010/07/pfor1-1007.html Virtual Mentor. July 2010; 12(7):569-572.
Gilligan T, Smith M, Raffin T. Ethical Issues of Care in the Cardiac Intensive Care Unit. In: Jeremias A, Brown DL (eds.), Cardiac Intensive Care, Second Edition. Elsevier, Philadelphia, 2010, pp. 9-24.
Harter TD. Book Review: James Stacey Taylor, Practical Autonomy and Bioethics. Reason Papers 2010; 32: 173-178.
Kodish E, Blake V. Human Subject Research Involving Children. In: Clinical Ethics in Pediatrics: A Case-Based Approach. (Diekema, Mercurio, Adam eds.), Cambridge University Press.
2009
Barfield R, Kodish E. (2009). Ethical Considerations in Pediatric Oncology Clinical Trials. In S. Orkin, D. Fisher, A. Look, S. Lux, D. Ginsburg, & D. Nathan (Eds.), Oncology of Infancy and Childhood. Philadelphia: Saunders Elsevier.
Berg J, Mehlman M, Rubin D, Kodish E. Making All the Children Above Average: Ethical and Regulatory Concerns for Pediatricians in Pediatric Enhancement Research. Clinical Pediatrics. 2009 Jun;48(5):472-80.
Berlinger N, Flamm A. Define “Effective”: The Curious Case of Chronic Cancer. Hastings Center Report. 2009 Nov-Dec;39(6):17-20.
Bruce CR: Case Analysis. Bio Quarterly. 2009;19(6),3-4.
Bruce, CR; Flamm AL. (2009). Case commentary. Virtual Mentor. 2009;11(3)207-214.
Chubak B, Thomas AJ. (2009). Ethical Dilemmas in Male Infertility. In E. Sabanegh Jr. (Ed.), Male Infertility: Problems and Solutions. New York: Humana Press.
Cuttler L, Marinova D, Mercer MB, Connors A, Meehan R, Silvers JB. Patient, Physician, and Consumer Drivers: Referrals for Short Stature and Access to Specialty Drugs. Medical Care. 2009 Aug;47(8):858-65.
Eves M, Ford PJ. (2009). Surrogate Decision Making: Durable Power of Attorney. In M. Kattan (Ed.), Encyclopedia of Medical Decision Making. Thousand Oaks: SAGE Publications. Inc.
Farrell RM, Beigi R. Pandemic Influenza and Pregnancy: An Opportunity to Reassess Maternal Bioethics. The American Journal of Public Health. 2009 Oct;99 Suppl 2:S231-5.
Farrell RM. True north. The Hastings Center Report. 2009 Mar-Apr;39(2):9-10.
Fernandez CV, Gao J, Strahlendorf C, Moghrabi A, Pentz R, Barfield R, Baker J, Santor D, Weijer C, Kodish E. Providing Research Results to Participants: Attitudes and Needs of Adolescents and Parents of Children with Cancer. Journal of Clinical Oncology. 2009 Feb 20;27(6):878-83.
Ford PJ, DeMarco, JP. Anonymous Phone Calls. Hastings Center Report, 2009 Jul-Aug;39(4):11-2.
Ford PJ, Deshpande A. (2009). Ethics: Life and Death Choices in Traumatic Brain Injury. In J. Jallo, CM Loftus (Eds.), Neurotrauma and Critical Care of the Brain. New York: Thieme Medical Publishers.
Ford PJ. (2009). Hacking the Mind: Existential Enhancement in Ghost in the Shell. In S. Shapshay (Ed.), Bioethics at the Movies. Baltimore: John’s Hopkins University Press.
Ford PJ. Vulnerable Brains: Research Ethics and Neurosurgical Patients. Journal of Law, Medicine, and Ethics. 2009 Spring;37(1):73-82.
Foster MW, Mulvihill JJ, Sharp RR. Evaluating the Utility of Personal Genomic Information. Genetics in Medicine. 2009 Aug;11(8):570-4.
Gatliff J, Ford PJ. 2009. “Moral Factors,” in Encyclopedia of Medical Decision Making. ed. Kattan M. Sage: 783-786.
Gerrek M: Commentary - Primate Stroke Research: Still Not Interested. American Journal of Bioethics Neuroscience. 2009 May;9(5)29.
Gordon CR, Siemionow M, Papay F, Pryor L, Gatherwright J, Kodish E, Paradis C, Coffman K, Mathes D, Schneeberger S, Losee J, Serletti JM, Hivelin M, Lantieri L, Zins JE. The World's Experience with Facial Transplantation: What Have We Learned Thus Far? Ann Plast Surg. 2009 Nov;63(5):572-8
Hutchinson JF, Sharp RR. Karma, Reincarnation, and Medicine: Hindu Perspectives on Biomedical Research. Genomic Medicine. 2008 Dec;2(3-4):107-11.
Landy DC, Coverdale JH, McCullough LB, Sharp RR. Prepublication Review of Medical Ethics Research: Cause for Concern. Academic Medicine. 2009 Apr;84(4):495-7.
McGowan M, Burant C, Moran R, Farrell RM. Patient Education and Informed Consent for Preimplantation Genetic Diagnosis: Health Literacy for Genetics and Assisted Reproductive Technology. Genetics in Medicine. 2009 Sep;11(9):640-5.
Messinger-Rapport B, Baum E, Smith M. Advance Care Planning: Beyond the Living Will. Cleveland Clinic Journal of Medicine. 2009 May;76(5):276-85.
Paradis C. Jennifer S. Hawkins and Ezekiel J. Emanuel. Exploitation and Developing Countries: The Ethics of Clinical Research. New England Journal of Medicine 2009 Apr. 9;360(15)1577.
Ramirez L, Huestis S, Yap TY, Drotar D, Zyzanski S, Kodish E. Potential Chemotherapy Side Effects: What do Oncologists Tell Parents? Pediatric Blood and Cancer. 2009 Apr;52(4):497-502.
Read K, Fernandez CV, Gao J, Strahlendorf C, Moghrabi A, Pentz R, Barfield R, Baker J, Santor D, Weijer C, Kodish E. Decision-Making by Adolescents and Parents of Children with Cancer Regarding Health Research Participation. Pediatrics. 2009 Sept;124(3):959-965.
Sabanegh E, Thomas AJ. (2009). Microsurgical Treatment of Male Infertility. In L. Lipsultz, S. Howards & C. Neiderberger (Eds.), Infertility in the Male. New York: Cambridge University Press.
Sharp RR, Achkar JP, Brinich MA, Farrell RM. Helping Patients Make Informed Choices About Probiotics: A Need for Research. American Journal of Gastroenterology. 2009 Apr;104(4):809-13.
Sices L, Egbert L, Mercer MB. Sugar-Coaters and Straight Talkers: Communicating About Developmental Delays in Primary Care. Pediatrics. 2009 Oct;124(4):e705-13.
Siemionow M, Papay F, Alam D, Bernard S, Djohan R, Gordon C, Hendrickson M, Lohman R, Eghtesad B, Coffman K, Kodish E, Paradis C, Avery R, Fung J. Near-total Human Face Transplantation for a Severely Disfigured Patient in the USA. Lancet. 2009 Jul 18;374(9685):203-9.
Smith M. A Possible Solution, But Not the Last Word. Hastings Center Report. 2009 Nov-Dec;39(6):3
Smith M. Medical Appropriateness Review: Appropriately Performed by a Medical Committee. Health Matrix 2008, 18(2):237-244. [Published Summer 2009]
Smith M, Eves M. (2009). Patient Rights. In M. Kattan (Ed.), Encyclopedia of Medical Decision Making, Thousand Oaks: SAGE Publications, Inc.
Weise, KL. How do we deal with the patient who asks for nontraditional, complementary, or alternative therapies? In Critical Care Ethics: A Practice Guide from the ACCM Ethics Committee, 2nd Edition. Thompson DR, Kummer HB, Eds. 2009, Society of Critical Care Medicine.
Weise, KL. What unique pediatric and neonatal considerations need to be addressed? In Critical Care Ethics: A Practice Guide from the ACCM Ethics Committee, 2nd Edition. Thompson DR, Kummer HB, Eds. 2009, Society of Critical Care Medicine.
Weise, KL. What is the “rule of double effect”? In Critical Care Ethics: A Practice Guide from the ACCM Ethics Committee, 2nd Edition. Thompson DR, Kummer HB, Eds. 2009, Society of Critical Care Medicine.
Yap TY, Yamokoski A, Noll R, Drotar D, Zyzanski S, Kodish E. Teaching and Measuring Better Informed Consent: A Physician-Directed Intervention: Teaching and Measuring Better Informed Consent. Academic Medicine. 2009 Aug;84(8):1036-42.
Yarborough M, Fryer-Edwards K, Geller G, Sharp RR. Transforming the Culture of Biomedical Research From Compliance to Trustworthiness: insights from non-medical sectors. Academic Medicine. 2009 Apr;84(4):472-7.
Yarborough M, Sharp RR. Public trust and research a decade later: what have we learned since Jesse Gelsinger's death? Molecular Genetics and Metabolism. 2009 May;97(1):4-5.
Zhukovsky DS, Hwang JP, Palmer JL, Willey J, Flamm AL, Smith M. Wide Variation in Content of Inpatient Do-Not-Resuscitate Order Forms Used at National Cancer Institute-Designated Cancer Centers in the United States. Supportive Care in Cancer. 2009 Feb;17(2):109-15.
2008
Benzel E, Roy S, Gilberston L, Schlenk R, and Ford P. (with technical writer) 2008. “Innovation: Making the Commitment, Managing the Conflict in the Neurological Institute.” CCF Neuroscience Pathways, Fall/Winter.
Boissy AR, Ford PJ, Edgell RC, Furlan A. 2008. “Ethics Consultations in Stroke and Neurological Disease: A 7 - Year Retrospective Review.” Neurocritical Care, 9(3): 394-399.
DeMarco JP, Ford PJ. 2008. “Ethics and Research in Terminal Refractory Patients” 3(2). 1, 10-11. Clinical Oncology News – Ethics Column
Farrell R. Chapter 4: “Informed Consent” in Office Hysteroscopy and the Evaluation of the Uterine Cavity. Eds. Eds. L.D. Bradley and T. Falcone. St. Louis: Mobsy, 2008.
Farrell R and Wallach E. Chapter 2: “Ethics and Pelvic Surgery” in TeLinde’s Operative Gynecology, 10th Edition. Eds J. Rock and J. Thompson. Philadelphia: Lippincott, Williams and Wilkins, 2008.
Farrell RM, Falcone, T. Review of Surrogate Motherhood and the Politics of Reproduction by Susan Markens. New England Journal of Medicine. 358:651-52.
Farris S, Giroux M, DeMarco J, Ford P. 2008. “Deep Brain Stimulation and the Ethics of Protection and Caring for the Patient with Parkinson's Dementia,” Movement Disorders, 23(14): 1973-1976.
Flamm AL. Is the Baby in the Bathwater? A Defining Moment for the Texas Advance Directives Act Review Process for Medical Futility Judgments. Health Matrix Symposium Issue on Medical Futility, 2008
Ford PJ, Dudzinski DM. eds. 2008, Complex Ethical Consultations: Cases that Haunt Us. Cambridge University Press, 278pp.
Ford PJ. 2008. “Special Section on Clinical Neuroethics Consultation: Introduction.” Healthcare Ethics Committee (HEC) Forum, 20(4): 311-314.
Ford PJ. 2008. “Quality of Life, Professionalism, and Research Ethics in Spine Trauma,” in Spine Trauma and Critical Care. eds. Jallo J, Vaccaro AR. Thieme: 220-228.
Ford PJ. 2008. “The Clinical Ethicist” in Palliative Medicine. ed. Walsh D. Elsevier Science.
Ford PJ, DeMarco JP. 2008. “Sleeping Unto Death: Ethics of Palliative Sedation.” 3(1): 1, 18-19. Clinical Oncology News – Ethics Column
Foster MW, Sharp RR. The contractual genome: how direct-to-consumer genomic services may help patients take ownership of their DNA. Personalized Medicine 5 (2008): 399-404.
Foster MW, Sharp RR. Out of sequence: how consumer genomics could displace clinical genetics. Nature Reviews Genetics 9 (2008): 419.
Hull SC, Sharp RR, Botkin JR, Brown M, Hughes M, Sugarman J, Schwinn D, Sankar P, Bolcic-Javonivic D, Clarridge BR, Wilfond BS. Patients’ views on identifiability of samples and informed consent for genetic research. American Journal of Bioethics 8 (2008): 62-70.
Jones G, DeMarco J, Ford PJ. 2008. “Do Oncologists Have a Duty to Warn Third Parties?” 3(11). Clinical Oncology News – Ethics Column
Kodish E. Co-Editor, Cleveland Clinic Journal of Medicine
Special Supplement: Ethical Challenges in Surgical Innovation Summit Proceedings
Supplement 6, Volume 75. November 2008.
Mueenuddin H, Kodish E. Role of independent advocates for research subjects who are wards of state. Virtual Mentor. 2008; 10(8):524-6.
Paradis, C, Weise, K. “Research Bioethics.” In Palliative Medicine ed: Walsh, Declan. Publ: Elsevier. 2008
Paradis, C. Bias in Surgical Research. Annals of Surgery 2008; 248(2)
Sharp RR, Yarborough M, Walsh JW. Responsible patient advocacy: perspectives from the Alpha-1 Foundation. American Journal of Medical Genetics 146 (2008): 2845-2850.
Sharp RR, Landy DC, Scott AR, Kicklighter LA. Who is buying bioethics research? American Journal of Bioethics 8 (2008): 54-58.
Sharp RR, Marchant GE, Grodsky JA. Genomics and Environmental Regulation: Ethical, Legal, and Policy Issues. Baltimore, MD: Johns Hopkins University Press (2008).
Sharp RR, Marchant GE, Grodsky JA. Environmental protection in the age of genomics. In Genomics and Environmental Regulation: Ethical, Legal, and Policy Issues. Baltimore, MD: Johns Hopkins University Press (2008).
Smith M. Chaplaincy and Clinical Ethics: A Common Set of Questions. The Hastings Center Report 38(6): 28-29, 2008.
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